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Animal Antiks raised £2,282 from 54 supporters
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Closed 18/09/2018
Weʼve raised £2,282 to help fund a vehicle which is vital for Twyla and her amazing parents live her life to its fullest.
- Funded on Tuesday, 18th September 2018
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Story
Help Twyla - a unique child - live a better life
Twyla is a happy five year old girl, diagnosed soon after birth with a life limiting condition, one of just 1200 people worldwide. The very rare metabolic condition, known as CDG, means she cannot talk, sit unaided, crawl or walk because her muscle tone, sight and speech are so badly affected. She also struggles with several types of seizure, including apnoea, where she stops breathing without warning, meaning oxygen and breathing equipment must be carried wherever she goes.
When first diagnosed doctors predicted she wouldn't live beyond the age of two. But Twyla is a fighter and has two devoted and loving parents. Neville, her dad, gave up work to make sure she gets the 24 hour care she needs. Charlene is a working mum, who spends any spare time raising awareness about CDG. To meet the three of them is to be touched by their determination.
Animal Antiks met Twyla for the first time in early 2016 and staff were so taken with her strength and character that they agreed to work with her free of charge, whenever she was well enough to visit the farm. Everyone looks forward to those visits and the time she spends with the animals is amazing therapy for her - whether that's stroking a chicken or a dog, or riding a pony.
Now Twyla is five she's too heavy to lift in and out of the family car, so attending school, visiting Animal Antiks or enjoying short family breaks, will become impossible unless Neville and Charlene can get a vehicle adapted for wheelchair access and big enough to carry breathing equipment and everything else Twyla needs. The deposit alone for such a vehicle is £5,000 - can you help?
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Supporters
54
graham Salisbury
Aug 17, 2018
£30.00
Sonia Gill
Aug 6, 2018
To a beautiful family - sorry we couldn't be there on the day x
£100.00
Penny St. Lawrence
Jul 30, 2018
It is a pleasure to contribute towards helping this lovely family, who face unimaginable problems every day with courage and quiet determination, and are pleasant and considerate to all around them.
£10.00
Anonymous
Jul 21, 2018
£20.00
Carmel Tooher
Jul 20, 2018
best regards & wishes
£50.00
Natalia
Jul 20, 2018
Good luck Twyla, Charlene & Neville!! I hope you get the funds you need! All the best!
£50.00
Rab Wilson
Jul 17, 2018
Best of luck getting what you need for your daughter
£10.00
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