I've raised £100 to help fund private paediatric physio sessions which are tailored to Jojo and have already bought her on in leaps and bounds.

Organised by Anne-Marie Eveleigh
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Children and youth

Story

Olive's lovely little friend, JoJo, has a rare genetic condition called Prader Willi Syndrome (PWS).

PWS is a condition which happens entirely by chance - a tiny missing piece of genetic information on chromosome 15. Despite it being tiny, this missing DNA effects almost every aspect of JoJo's function.

However, Jojo's family refuse to let it beat them. They don't see any reason why JoJo won't be able to do everything and anything that her peers can - it might take her a little longer to get there, but they want to give her every chance going to fulfil her potential and beyond.

Everyone who has met JoJo knows how funny, smiley, sociable and loving she is. They also know how fast she can now bum-shuffle about the place. As lovely as this is (especially seeing as she could hardly move an inch a year ago), Jojo's family would love to see her get up and walking so she can leave an even bigger trail of untidiness in her wake than she already does!

About fundraiser

Anne-Marie Eveleigh
Organiser

Donation summary

Total
£120.00