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Closed 01/12/2019
Weʼve raised £0 to help a friend of mine more like my sister in need.
- Closed on Sunday, 1st December 2019
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Story
Hi All
I am starting this Justgiving to help a friend of mine more like my sister in need.
My sister is Diyanah Khan and she is 35 years old. She is suffering from a brain disorder called FND (Functional Neurological Disorder)
FND is a common and disabling cause of neurological symptoms, and can affect men, women and children of all ages. People with FND can experience a wide variety of symptoms including:
📍weakness and abnormal patterns of movement (e.g. tremor, abnormal posturing of limbs, gait problems)
📍attacks of abnormal movement/change in awareness that resemble epileptic seizures (functional seizures/NEAD)
📍sensory problems
📍cognitive problems
📍visual and speech problems
People with FND appear to lose the ability to control or access their body normally. The “basic wiring” of the nervous system is intact, but when people with FND try to use it to move, feel or think, they cannot get access to it normally. FND is not a problem with motivation, and symptoms are not imagined or “put on”. It is a specific diagnosis, and not simply a diagnosis that is used when tests are normal or no better explanation can be found. Specific features on clinical history, examination and related tests, are used to make the diagnosis.
This disorder has left her with left side partially paralysed and now is dependent on social services. Her home as become unsuitable for her to live in and she is now having to be bathed by social services in her room. It's affecting her getting out as she has no family around and is currently on the basic benefits making it diffuclt to get all the things she needs.
I am now wanting to raise money for her to be able to buy a second hand electric wheelchair so she can get out and have some sort of independencey and dignity left.
Thank you all so so much for understanding.
Updates
1
4 years ago
Anum Rehman
4 years agoI just want to tell who is supporting my friend in this difficult time. I really feel bad for her as she is completely on her own and struggling hard emotionally and financially as well. It feels like she is trapped in a room due to this disability. By your support the money i will raise will definitely go for her basic need which is currently having an electric chair & food. Just trying to give her independence back will all your help. Even a single penny matters for someone in need. Thanks
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