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Closed 20/02/2019

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    Weʼve raised £0 to Macrocephaly Save Child Life – Medically declared 6 months life expectancy Subhan (Effected Child) with M-CMTC fetal diseased

    Closed on Wednesday, 20th February 2019

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    Story

    Macrocephaly

    Save Child Life – Medically declared 6 months life expectancy

    Subhan (Effected Child) with M-CMTC fetal diseased

    Doctor’s Opinion / Present Medical Status

    This case is with clinical outcomes including severe postnatal growth failure, intractable cardiac arrhythmia, and will lead to sudden infant death.

    Macrocephaly-Cutis Marmorata Telangiectatica Congenita (M-CMTC) constitutes a distinct entity characterized by prenatal overgrowth, macrosomia, hemihypertrophy, macrocephaly, nonobstructive hydrocephaly, frontal bossing, hypotonia, developmental delay, generalized or facial capillary malformation with upper philtral nevus flammeus and cutis marmorata, joint hypermobility, loose skin, toe syndactyly, and postaxial polydactyly. Arrhythmia has not been described previously as one of the symptoms of M-CMCT. This child Patients with M-CMTC associated with severe postnatal growth failure and arrhythmia may constitute a distinct clinical subtype of M-CMTC with an increased risk of life-threatening episodes or sudden death.

    This clinical subtype of M-CMTC is having only six months life expectancy more, important is to prevent these serious potential complications immediately. The treatment suggested is costly in nature to save the life of this child. If treated in-time will save the child life.

    Please donate to save this child life at http://www.ssaf.org.pk/?page_id=2144

    E-mail for donations: president@ssaf.org.pk

    Donations need total: 70,000 $

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    AOUN RAZA

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      5 months ago

      AOUN RAZA started crowdfunding

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      Page last updated on: 10/23/2018 10.32

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        AOUN RAZA

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