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A CHARALAMBOUS raised £68,342.5 from 1430 supporters

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Closed 16/03/2021

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£68,342
raised of £60,000 target by 1430 supporters

    Weʼve raised £68,342 to help fund life changing SDR surgery for Aria to be able to walk

    Funded on Tuesday, 16th March 2021

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    Story

    Our names are Alex and Katerina and this is our daughter Aria Charalambous. She was born 6.5 weeks premature and weighed 4.6oz. It wasn’t until Aria started to become substantially delayed with her milestones when we started to suspect that something was very wrong. After various appointments with neurologists, orthopaedics and paediatricians, Aria was referred for an MRI. It transpired that Aria had suffered a brain injury around the time of her birth known as Periventricular Leukomalacia (PVL). This in turn led to a diagnosis of Spastic Diplegia which is a form of Cerebral Palsy. Fortunately, Aria’s Cerebral Palsy is mild and through a lot of hard work and lots of physio, at 2 years old, Aria is slowly taking some assisted steps in her leg braces (AFOs).

    The Cerebral Palsy which mainly affect Aria’s lower extremities (ankles and knees) means that she suffers with tightness and stiffness of the affected muscles. This makes it very difficult and painful for Aria to walk. Aria’s legs and foot posture are such that she does not have the stability to walk or run around like a child should. As Aria grows, the stiffness will eventually overwhelm her muscles and thus make it even more tiring and painful for her to walk. Without the surgery Aria needs, in years to come Aria is at risk of losing her ability to walk.

    There is currently no cure for Cerebral Palsy. However, Aria has been accepted as an ideal candidate for a life changing surgery known as Selective Dorsal Rhizotomy (SDR) surgery at St Louis Children’s Hospital, Missouri, USA. Unfortunately, Aria does not meet the criteria to have this procedure on the NHS. This surgery will dramatically improve Aria’s quality of life. SDR is currently the only procedure which can permanently remove spasticity (stiffness) caused by Cerebral Palsy. It corrects muscle spasticity by cutting the nerve rootlets in the spinal cord that are sending abnormal signals to the muscles whilst leaving the healthy nerves intact.

    Aria will also need an additional surgical procedure for muscle/tendon lengthening (PERCs) to relieve and stretch the Achilles tendon. Although SDR relieves spasticity, the contractures that remain require lengthening.

    Given the severity of the SDR surgery, Aria will need to remain in the US for approximately 4 weeks post op to recover. But once she does, the stiffness and pain in her ankles will be relieved and she will be on her way to living a normal life. This will mean Aria will be able to walk and run pain free.

    The sum stated above will help in covering:

    • SDR surgery (including pre-op and post -operative care)

    • Braces and equipment

    • PERCS

    • 4 week hospital stay

    Aria is a determined, intelligent and stubborn little girl who loves the company of people. She loves tea parties, painting and singing to Disney songs at the top of her lungs. This surgery will give her the chance to keep up with her friends and get around independently in the way that a little girl should. Please help us give Aria the chance to lead the happy and pain free life that she deserves. Any way you can support and share is much appreciated by us both. If you would like to follow Aria's progress and see how your support is making a difference then feel free to view her Instagram page @ariasbattletowalk x

    Updates

    3

    • A CHARALAMBOUS3 years ago
      A CHARALAMBOUS

      A CHARALAMBOUS

      3 years ago

      We want to say a big thank you to everyone who has donated and supported us over the last week. Truly humbling to see how much you all took time out of your day to support with huge generosity. Thank you to all our friends, family, strangers who just wanted to show love and the greek community who I know have come together to give Aria the chance she deserves. We’d like you all to see how your support has made a difference so follow Aria’s Instagram to see her progress on her road to walking and one day playing for Arsenal. @ariasbattletowalk

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    • A CHARALAMBOUS3 years ago
      A CHARALAMBOUS

      A CHARALAMBOUS

      3 years ago

      Just want to add a special thank you to mine and Katerina's family and friends who unfortunately we have not been able to see properly for some time due to covid. What this last week has shown us is you are all ready to support us when needed and this has meant more than you know to me and Katerina. Also big thank you to our family and friends in Cyprus who we hope to see soon once Boris Johnson lets us x

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    • A CHARALAMBOUS3 years ago
      A CHARALAMBOUS

      A CHARALAMBOUS

      3 years ago
      Update from the Page owner

      Thank you

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    3 years ago

    A CHARALAMBOUS started crowdfunding

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    Page last updated on: 3/9/2021 08.35

    Supporters

    1430

    • Anonymous

      Anonymous

      Mar 9, 2021

    • Anonymous

      Anonymous

      Mar 9, 2021

      £20.00

    • Katerina Pedrithes

      Katerina Pedrithes

      Mar 4, 2021

      Here's wishing you and all your family the best for the future.

      £45.00

    • Anonymous

      Anonymous

      Feb 25, 2021

      £50.00

    • Anonymous

      Anonymous

      Feb 24, 2021

      All the best.SM

      £100.00

    • Lella Bunch

      Lella Bunch

      Feb 22, 2021

      Wishing you the best of luck, may God be with you xxx

      £120.00

    • Anonymous

      Anonymous

      Feb 22, 2021

    What is crowdfunding?

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    A CHARALAMBOUS

    A CHARALAMBOUS

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