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Arron Blythe raised £415 from 14 supporters
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Closed 13/11/2018
Iʼve raised £415 to Help Digby,was diagnosed with a fatal muscle-wasting condition called Duchenne Muscle Dystrophy which has no cure & visits GOSH every week
- London, UK
- Funded on Tuesday, 13th November 2018
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Story
✨Digby Donnelly✨
Last summer digby was diagnosed with a progressive and fatal muscle-wasting condition called
Duchenne Muscular Dystrophy (Which there is no cure)
The disease causes muscles to break down and will see most into a wheelchair before their teen years and life span of only 20years...
Which means running around like other kids will soon become a thing of the past
Digbys parents refuse to sit back and let this disease eat away at their son
Each week digby travels to Great Ormond Street hospital in London , with his mum for a overnight stay
He is the youngest of three boys in the UK recieving the infusion of a new drug , Eteplirsen ,. Which is hoped to slow down the effects
Digbys parents have launched 'Digbys Smile' a campaign to raise awareness and pay for specialist equipment as and when its needed to give digby the fullest life he can
Once we hit the £1000 we're going to book a Marathon
Many thanks
Arron Blythe & Stuart brown
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Supporters
14
Michelle Vesey-wells
Aug 30, 2018
Money raised by Adelaide from her Bric a Brac stall at Chartham Community Market.
£30.00
James Clifton
Aug 16, 2018
Nothing like being Egg'd!
£20.00
Paul Sunderland
Aug 15, 2018
I know it's only a small donation. But every little helps.
£10.00
Anthony Haynes (Rothenberger)
Aug 15, 2018
A great cause, happy to stick my hand in my pocket, good luck Digby!
£10.00
Steve Challinor
Aug 15, 2018
Your a good egg Arron
£10.00
Lee Edwards
Jul 26, 2018
👍🏻👍🏻
£50.00
Steve Challinor
Jul 25, 2018
Great cause and good luck Arronfrom Fran @spirotech
£50.00
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