I've raised £1000 to Help Digby,was diagnosed with a fatal muscle-wasting condition called Duchenne Muscle Dystrophy which has no cure & visits GOSH every week

Organised by Arron Blythe
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London, UK ·Children and youth

Story

✨Digby Donnelly✨

Last summer digby was diagnosed with a progressive and fatal muscle-wasting condition called
Duchenne Muscular Dystrophy (Which there is no cure)

The disease causes muscles to break down and will see most into a wheelchair before their teen years and life span of only 20years...

Which means running around like other kids will soon become a thing of the past

Digbys parents refuse to sit back and let this disease eat away at their son

Each week digby travels to Great Ormond Street hospital in London , with his mum for a overnight stay

He is the youngest of three boys in the UK recieving the infusion of a new drug , Eteplirsen ,. Which is hoped to slow down the effects

Digbys parents have launched 'Digbys Smile' a campaign to raise awareness and pay for specialist equipment as and when its needed to give digby the fullest life he can

Once we hit the £1000 we're going to book a Marathon

Many thanks
Arron Blythe & Stuart brown

About fundraiser

Arron Blythe
Organiser

Donation summary

Total
£415.00