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Arthur Mountain raised £785 from 26 supporters

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Closed 31/12/2019

7%
£785
raised of £10,000 target by 26 supporters

    Weʼve raised £785 to help fund Evelina London - Mountain ward, RMHC (UK) & Arthur’s story to promote awareness for tube fed baby’s.

    Evelina London children’s hospital
    Funded on Tuesday, 31st December 2019

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

    The page owner is responsible for the distribution of funds raised.

    Story

    Arthurs story 💙

    Arthur was born with Laryngomalacia and had apparent feeding issues from birth. By 4 months old Arthur had already been through a lot; 3 admissions to hospital (PRUH & Lewisham) with bronchiolitis, one of which left to him being hours away from being transferred to Kings to be put in an induced coma and have a machine do his breathing for him.

    Following this came many trips up to the Evelina London children’s hospital with ENT and SLT teams and the assumption made that his issues aspirating were related to his Laryngomalacia. It was then decided that Arthur would be made NIL by mouth (as of January 18th 2019) and be exclusively fed via his NG tube as anything orally would be aspirated and then lead to his recurrent breathing, lung/airway problems and infections.

    Arthur was admitted again; this time to the Evelina where he spent almost a month. He spent a lot of time on oxygen, cannula IV drips for fluids and drastically reduced NG feeds (if any). He under went x-rays, scans, endoscopy and a Microlaryngoscopy and bronchoscopy (MLB). During the MLB some surgery was done on his throat to remove excess tissue and widen the airway.

    Since this long stay at the Evelina he has had again bronchiolitis and then on his latest admission aspiration pneumonia. He has had some more tests; a PH study, impedance study and video fluoroscopy after being referred to surgical/gastro for investigation, all of which came back with minor signs of reflux.

    As of his current admission (from 29/04/19) for ongoing coughing/choking episodes lasting 3 weeks; he is now currently under 7 consultants/teams (ENT, SLT, general paediatric, surgical, gastro, respiratory and neurology) and also different local support teams and on the waiting list for a gastrostomy (PEG) which is booked for 28/05/19 (he was due to have this 5 weeks ago but was too unwell!!).

    Our mission

    All money raised will go towards Arthurs ward at the Evelina London childrens hospital (mountain ward) and Ronald Mcdonald house charity uk (Evelina London) both of which have been like our second home over the past months; to help buy essential life saving equiptment, and help fund much needed comforts for parents and family of patients. We would also like to use a percentage of donations towards promoting ‘Arthurs story’ so we can raise as much awareness for tube fed babies and support for their family as possible.

    If you have other means of donation such as offering services i.e cooking, fun days, spa days etc to get run at RMH for parents and families then please get in touch via Arthurs instagram (mountain.arthur) or facebook page (Arthur Mountain).

    https://www.rmhc.org.uk

    https://www.evelinalondon.nhs.uk/Home

    https://www.evelinalondon.nhs.uk/parents-and-visitors/wards/our-wards

    https://www.instagram.com/mountain.arthur

    https://www.facebook.com/arthur.mountain.9

    Updates

    5

    • Arthur Mountain1 year ago
      Arthur Mountain

      Arthur Mountain

      1 year ago

      Arthur is now under an amazing respiratory physiotherapist! We have already been given a suction machine for clearing his mouth/nose and throat when he is choking or bringing secretions up. They have now prescribed us a nebuliser for at home for loosening anything in his airways when he is unwell and also a pump and spacer which Arthur must use 3 times per day to open his airways/lungs. Along side this every morning we must use percussion physio to ‘loosen him’ for the day, or do it up to 4 times per day when he is unwell.

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    • Arthur Mountain1 year ago
      Arthur Mountain

      Arthur Mountain

      1 year ago

      Good news is Arthur has had his MRI, the results should be with us within a week. Bad news is Arthur is struggling with recovery from the anaesthetic, his heart rate is sky high! He does not look/is not acting overly well or himself either. He has been put on an IV for extra fluids, and the nurses and doctors are keeping a close eye. The hope is that he may just be dehydrated however they have said he could be having a reaction from the GA which could result in more invasive action. Arthur will need a catheter if he doesn’t pass urine by 9.

      Update from the Page owner

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    • Arthur Mountain1 year ago
      Arthur Mountain

      Arthur Mountain

      1 year ago

      Update (07/05/19) - Arthur has currently been put on purée tasters by SLT (speech and language team), he is allowed to have a spoon dipped in purée once per day for 5 minuets to introduce some taste and also to keep him interested in some kind of oral experience. Arthur appears to be getting a wet upper airway and recurrent coughing - he is under close observation as it is very likely this will lead him to getting unwell... again. SLT may well review this over the next few days and stop tasters until they feel it is safe to try again.

      Share this update to help us raise more

    1 year ago

    Arthur Mountain started crowdfunding

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    Page last updated on: 12/8/2019 06.37

    Supporters

    26

    • Daren Mountain

      Daren Mountain

      Dec 8, 2019

      From the members of Cray valley Wanderers Golf society

      £85.00

    • Andy B

      Andy B

      Nov 7, 2019

      £25.00

    • Carlie John & Reenie

      Carlie John & Reenie

      Aug 22, 2019

      Happy 1st Birthday to you Arthur you are a little miracle 💙

      £20.00

    • Darcey x

      Darcey x

      Aug 13, 2019

      £5.00

    • Anonymous

      Anonymous

      Jul 5, 2019

      ❤️

      £40.00

    • Rachel Sands

      Rachel Sands

      Jun 21, 2019

      With love from The Sands Clan - hope Arthur’s condition can be successfully managed without long hospital admissions - Evelina is a fantastic hospital so you are in great hands. 💕

      £20.00

    • Mustie Mustafa

      Mustie Mustafa

      May 21, 2019

      Good luck bro, praying for you.

      £10.00

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    About Crowdfunding
    About the fundraiser
    Arthur Mountain

    Arthur Mountain

    Evelina London children’s hospital

    Instagram - @mountain.arthur Facebook - Arthur Mountain https://www.rmhc.org.uk/

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