Hi Everyone, meet Alexander!

Alexander was born on 1st September 2020, at the time of writing he is just 9 weeks old. Our beautiful son was born with craniosynostosis.

For anyone who hasn’t heard of it, craniosynostosis is a rare condition that affects an estimated one in every 2,500-3,000 births. Boys are three times more likely to develop the condition than girls.

The condition relates to the premature closure of one or more of the joints that connect the bones of a baby's skull (cranial sutures). Normally, the bones remain separate until about age 2, while the brain is growing. They then fuse together and stay connected throughout life. The closure is premature when it occurs before brain growth is complete.

As you can imagine, this is alarming to any new mother. But even more alarming is the fact that without early treatment this condition can lead to intracranial brain pressure which in turn can cause neurological (brain) damage.

Luckily, there is a solution: a less invasive surgery (Endoscopic Strip Craniectomy) which can be performed before 6 months of age and massively reduces the risk of neurological damage.

However, The NHS is under immense pressure due to Covid- 19 at the moment. Waiting lists are growing longer by the day, everything is being pushed back and Alexander doesn’t have the time to wait. We need to act quickly to give our son the best chance of avoiding that damage.

I’m sure every parent can understand our desire to do something.

So, we’re making this appeal because there is another option.

We have looked into how much it would cost to get the surgery done privately in England. The total cost of treatment, including surgery, consultations, scans and the post-operation helmets comes in at £20,000. This is an unfathomable amount for us. It may as well be a million.

So, we are asking people to help us to help our son.

By raising money for his surgery, we also hope to raise awareness for other children that are born with craniosynostosis

Any money raised and not needed by Alexander will go towards helping other children born with this rare condition.

Alexander would really love your help! Each penny or pound contributed will make a huge difference to his life.

Thank you for taking the time to read this and for any donations made.