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Marina Fulton raised £20,612.5 from 890 supporters

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Closed 28/02/2021

103%
£20,612
raised of £20,000 target by 890 supporters

    Weʼve raised £20,612 to help fund urgent surgery for our baby boy who has craniosynostosis.

    Northern Ireland
    Funded on Sunday, 28th February 2021

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

    The page owner is responsible for the distribution of funds raised.

    Story

    Hi Everyone, meet Alexander!

    Alexander was born on 1st September 2020, at the time of writing he is just 9 weeks old. Our beautiful son was born with craniosynostosis.

    For anyone who hasn’t heard of it, craniosynostosis is a rare condition that affects an estimated one in every 2,500-3,000 births. Boys are three times more likely to develop the condition than girls.

    The condition relates to the premature closure of one or more of the joints that connect the bones of a baby's skull (cranial sutures). Normally, the bones remain separate until about age 2, while the brain is growing. They then fuse together and stay connected throughout life. The closure is premature when it occurs before brain growth is complete.

    As you can imagine, this is alarming to any new mother. But even more alarming is the fact that without early treatment this condition can lead to intracranial brain pressure which in turn can cause neurological (brain) damage.

    Luckily, there is a solution: a less invasive surgery (Endoscopic Strip Craniectomy) which can be performed before 6 months of age and massively reduces the risk of neurological damage.

    However, The NHS is under immense pressure due to Covid- 19 at the moment. Waiting lists are growing longer by the day, everything is being pushed back and Alexander doesn’t have the time to wait. We need to act quickly to give our son the best chance of avoiding that damage.

    I’m sure every parent can understand our desire to do something.

    So, we’re making this appeal because there is another option.

    We have looked into how much it would cost to get the surgery done privately in England. The total cost of treatment, including surgery, consultations, scans and the post-operation helmets comes in at £20,000. This is an unfathomable amount for us. It may as well be a million.

    So, we are asking people to help us to help our son.

    By raising money for his surgery, we also hope to raise awareness for other children that are born with craniosynostosis

    Any money raised and not needed by Alexander will go towards helping other children born with this rare condition.

    Alexander would really love your help! Each penny or pound contributed will make a huge difference to his life.

    Thank you for taking the time to read this and for any donations made.

    Updates

    9

    • Marina Fulton4 months ago
      Marina Fulton

      Marina Fulton

      4 months ago

      Our beautiful baby boy Alexander has bounced back from surgery and has a bright beaming smile to share with you all. We are so grateful for all of your generous donations that have granted Alexander a happier and healthier future, it's all we ever wished for Alexander and you made this wish come true!

      Update from the Page owner

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    • Marina Fulton4 months ago
      Marina Fulton

      Marina Fulton

      4 months ago

      Alexander has had his surgery, all went well with no complications and is recovering now at home. Thank you to the doctors involved and thank you to everyone for getting us this far. He has yet to start helmet therapy and this will begin near the end of the month. We are still accepting donations for travel costs/follow-up appointments. After this we will continue to raise for G.O.S.H/Headlines/Craino Ribbons and raise awareness for other crainosynotosis warriors.

      Share this update to help us raise more

    • Marina Fulton4 months ago
      Marina Fulton

      Marina Fulton

      4 months ago

      Alexander has just turned 4 months old. We want to thank you for your continued support and generosity in enabling Alexander to get this far. We now have a surgery date for this month. It is a fantastic start to the new year. Any donations past our target contributes to follow up appointments , travel and accommodation costs and we really appreciate your help with this. Happy New Year everyone!

      Update from the Page owner

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    7 months ago

    Marina Fulton started crowdfunding

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    Page last updated on: 1/26/2021 13.33

    Supporters

    890

    • v & k wallace

      v & k wallace

      Jan 18, 2021

      Wishing baby Alexander WELL & LOVE TO ALL---v&k wallace

      £40.00

    • Anonymous

      Anonymous

      Jan 10, 2021

      Hi Marina.,Thinking of you all today and your beautiful baby boy. Wishing him a speedy recovery. Love from us all in Ballyclare..xx

    • Anonymous

      Anonymous

      Jan 9, 2021

    • Dirk Bungers

      Dirk Bungers

      Dec 24, 2020

      I wish you and your son all the best and a Merry Christmas.Greetings from Germany.Dirk Bungers

      £20.00

    • Patricia Sloan

      Patricia Sloan

      Dec 24, 2020

      Love and Prayers Marina! Stay strong for Alexander and his lovely sister! Xx

      £100.00

    • Molly

      Molly

      Dec 13, 2020

      Best Wishes

      £20.00

    • Sophie's Sensual Scents

      Sophie's Sensual Scents

      Dec 9, 2020

      £85.00

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    About Crowdfunding
    About the fundraiser
    Marina Fulton

    Marina Fulton

    Northern Ireland

    Alexander is a 9 week old baby who is running out of time to have endoscopic strip craniectomy.This surgery can only be performed before 6 months of age to prevent potential brain damage and disability. See more at: https://www.julingong.com/endoscopic-strip-craniectomy/

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