Your friends are fundraising. Don't miss out, opt in.

andrew Bailey

andrew Bailey is crowdfunding

0

%

£70raised of £200 target by 3 supporters

Weʼre raising £200 to help Ollie's Army in their fight against Battens Disease

What is crowdfunding?

Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

The page owner is responsible for the distribution of funds raised.

Story

Nige Norris, whom lets be honest, is not the youngest goat in the herd is walking the entire length (98 miles) of the Cheshire Ring in just 4 days all in aid of Ollie's Army.

Here's Ollie's mothers own words to explain..."The date was the 13th February 2015, a day that will stay with us forever. I can remember the colour of the walls, even the smell. As we sat in that small room with Ollie on his daddy’s knee we were told that our child has Battens Disease, that there is no cure and that life expectancy is between six and twelve years. Ollie was just four years old! Our world fell apart in that moment. We were told Battens Disease was so rare that they had never come across a child with it before".

Worse news was to follow. Only a few weeks later the family was to learn their little princess, Amelia, who had just turned 2 also had the disease. For the second time this families World fell apart!

Since then the family have been on an incredible journey and are still on that journey. Recently the National Institute for Health and Care Excellence (NICE) released the final evaluation document stating a treatment the children have been receiving (Cerliponase alfa) is now NOT recommended for treating CNL2 Batten Disease in the UK. This is despite NICE themselves acknowledging that the treatment improves children's quality of life and slows deterioration.

Ollie's family is one of the most incredible, inspiring, determined and loving families you could ever wish to meet. They'd be there for your family so it's only right that we are there for them! Thank-you.

Share this story

Updates

0

andrew Bailey

Updates appear here

    1 month ago

    andrew Bailey started crowdfunding

    Leave a message of support

    Page last updated on: 4/30/2019 18.46

    Supporters

    3

    • Mike Webb

      Mike Webb

      Apr 30, 2019

      Well done Good luck

      £40.00

    • Anonymous

      Anonymous

      Apr 30, 2019

      Well done to Nigel ..

    • ange and Dave leary

      ange and Dave leary

      Apr 30, 2019

      £20.00

    andrew Bailey

    Become a supporter

    Help andrew Bailey raise more

    About the fundraiser
    andrew Bailey

    andrew Bailey

    Report this Page
    Donate