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andrew Bailey raised £285 from 15 supporters

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Closed 28/08/2019

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£285raised of £200 target by 15 supporters

    Weʼve raised £285 to help Ollie's Army in their fight against Battens Disease

    Funded on Wednesday, 28th August 2019

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

    The page owner is responsible for the distribution of funds raised.

    Story

    Nige Norris, whom lets be honest, is not the youngest goat in the herd is walking the entire length (98 miles) of the Cheshire Ring in just 4 days all in aid of Ollie's Army.

    Here's Ollie's mothers own words to explain..."The date was the 13th February 2015, a day that will stay with us forever. I can remember the colour of the walls, even the smell. As we sat in that small room with Ollie on his daddy’s knee we were told that our child has Battens Disease, that there is no cure and that life expectancy is between six and twelve years. Ollie was just four years old! Our world fell apart in that moment. We were told Battens Disease was so rare that they had never come across a child with it before".

    Worse news was to follow. Only a few weeks later the family was to learn their little princess, Amelia, who had just turned 2 also had the disease. For the second time this families World fell apart!

    Since then the family have been on an incredible journey and are still on that journey. Recently the National Institute for Health and Care Excellence (NICE) released the final evaluation document stating a treatment the children have been receiving (Cerliponase alfa) is now NOT recommended for treating CNL2 Batten Disease in the UK. This is despite NICE themselves acknowledging that the treatment improves children's quality of life and slows deterioration.

    Ollie's family is one of the most incredible, inspiring, determined and loving families you could ever wish to meet. They'd be there for your family so it's only right that we are there for them! Thank-you.

    Updates

    4

    • andrew Bailey3 months ago
      andrew Bailey

      andrew Bailey

      3 months ago
      Update from the Page owner

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    • andrew Bailey4 months ago
      andrew Bailey

      andrew Bailey

      4 months ago

      We are delighted to confirm at 4pm on the 25th July Nige completed his walk. He crossed the finishing line quiet emotional, with blistered feet, sunburnt, exhausted but very happy! Thank-you so much to each and every one of you! Without your support Nige would honestly have never made it. Please continue to spread the word of Battens Disease and if not already then please go follow Ollie and Amelia on facebook https://www.facebook.com/olliesarmybattlingagainstbattens/ We are still accepting donations both online and in the shop.

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    • andrew Bailey4 months ago
      andrew Bailey

      andrew Bailey

      4 months ago

      Nige set off this morning (Monday 22nd July!) . His injury has improved and he's currently reporting no problems. As of Midday he was approaching Manchester City Centre. His target is to reach Sale by later today. That would have been 29 miles on the first day!

      Update from the Page owner

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    7 months ago

    andrew Bailey started crowdfunding

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    Page last updated on: 8/11/2019 09.26

    Supporters

    15

    • Cheryl

      Cheryl

      Jul 27, 2019

      Well done Nigel :)

      £5.00

    • Jean Hughes

      Jean Hughes

      Jul 26, 2019

      Well done. Fantastic effort especially in these extreme temperatures.

      £20.00

    • Christine Deakin

      Christine Deakin

      Jul 26, 2019

      Well done!!!

      £5.00

    • Craig, Debby & Nell

      Craig, Debby & Nell

      Jul 26, 2019

      Congratulations, a magnificent achievement.

      £20.00

    • Carole Shepherd

      Carole Shepherd

      Jul 26, 2019

      £10.00

    • Debbie Shawcross

      Debbie Shawcross

      Jul 26, 2019

      Fantastic Andrew. Well done and for such a great cause.

      £5.00

    • Sara Jamie Kipling

      Sara Jamie Kipling

      Jul 25, 2019

      £10.00

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    andrew Bailey

    andrew Bailey

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