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Weʼve raised £0 to seek private genetic testing for a condition affecting the nervous system and spine. The condition runs in the Bain family from stirling
- Closed on Thursday, 18th July 2019
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There is an unnamed genetic condition in the Bains/McDougall famillies from doune it has affected my great granddad, my grandad, my father, my uncle and my cousin all to different degrees u fortunately I have it severe. It affects the spine at l5/s1 and attacks the nervous system, causes ADHD and mood swings as well as mobility problems and cognitive problems as well as vit d and vit b6 defficiency. As it has been undiagnosed in previous generations NHS refuse to genetic test even though the condition is like an ataxia, hunters syndrome or lupus, all my affected relatives fie of stroke or heart attack by age 50 - 60 .
I am now 40 and getting worse by the day. I also have young children and would like to know what it is so I can get them tested and started on treatment before they get to same stage as me PLEASE HELP I had to give up my own business due to this causing disability and cant afford testing private its for my kids future not mine
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