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Sz Gy raised £230 from 11 supporters.

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Closed 01/10/2017

51%
£230raised of £450 target by 11 supporters

    Weʼve raised £230 to a Lovely little boy, Balintka.

    Time left
    Funded on Sunday, 1st October 2017

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    Story

    This is our 2nd fundraising to Balintka. His family would like to say THANK YOU to those who supported them earlier this year. They are desperate to save their little one's life. That is why they asked me to make an other "justgiving" page. Balint was 2 month old when he has been diagnosed with Spinal muscular atrophy 1 (SMA1). He spent most of his life in hospital. Doctors said they can not save his life. These words are the worst to hear for his family. They started a research. There is a medicine called Spinraza which could help and has been registered in the EU in 21/04/2017. This is one of the World's most expensive medicine. Hopefully the National Health Organization will pay a part of the money but even a small percentage of this big amount means a lot. They also need to spend so much money for treatments (some are sponsored and paid but some aren't). The family would do anything to save Balint's life. They kindly ask you to help if you can. A very small amount brings them closer to get the medicine. You can also help with sharing his story. If you need more information about the little boy please contact us. (His mother's name is Borbála Pusominé and they are from Jobbagyi, Hungary).

    The parents' message in Hungarian: "Kisfiunk Pusomi Bálint 2,5 éves. 2 hónapos korában gerincvelő izomsorvadást diagnosztizaltak nála. Idén áprilisban törzskönyveztek Magyarországon egy gyogyszert ami 70-80 % os javulást eredményez. Amerikában 220 millió forintba kerül. Az itthoni árát még nem tudjuk, jelenleg is folynak a tárgyalások a finanszírozásról. Ha itthon ennek a 220 milliónak csak az 1% át is kéne kifizetni jelenleg azt sem tudnánk sajnos megoldani saját erőből. Júniusban volt már itt egy gyűjtés,amit nagyon szèpen köszönünk. De még mindíg távol állunk attól az 1 % tól is és még a kezelés utáni rehabilitáció is költségekkel jár , így szeretnénk kérni ismét a segítségeteket. Előre is köszönjük mindenkinek ha tud segíteni. További infó kisfiunkról: Együtt Bálintka gyógyulásáért facebook csoportban."

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    Sz Gy

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      6 months ago

      Sz Gy started crowdfunding

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      Supporters

      11

      • Patricia F

        Patricia F

        Sep 17, 2017

        Remelem sikerul megkapnia a gyogyszert ennek a gyonyoru kisfiunak es jobban lesz!!!

        £20.00

      • Anonymous

        Anonymous

        Sep 8, 2017

        Sok erőt és gyógyulást!!

      • Anonymous

        Anonymous

        Sep 6, 2017

        Kitartàst Kisember!

        £10.00

      • Zsuzsanna Bukta

        Zsuzsanna Bukta

        Sep 5, 2017

        £20.00

      • B Zsiros

        B Zsiros

        Sep 5, 2017

        £20.00

      • Anonymous

        Anonymous

        Sep 4, 2017

      • G Kispal-Sarosi

        G Kispal-Sarosi

        Sep 4, 2017

        Bálintka gyógykezelésére 30£ot adomânyozok. Gabi S B

        £30.00

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      Sz Gy

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