Weʼre raising £1,000 to Raising money for a Cure 4 George i am taking part in the off road London to Brighton Charity Ride
- Basildon, UK
- 15 days to go
Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.
The page owner is responsible for the distribution of funds raised.
George was diagnosed at Great Ormond Street Hospital with Duchenne Muscular Dystrophy (DMD) at the age of 8. A genetic muscle wasting disease with no cure and 100% fatal! We can't begin to explain the heartbreak, sadness, tears, the anger, the emotional pain we feel, and devastation that this is really happening to our son...our family....but it is!...This terrible progressive and rare disease is very real, and could happen to any family. With endless hospital appointments our life journey has changed forever from one blood test!
DMD is the most common killer in boys and the severest genetic muscle wasting condition. There are approx 3500 people affected (mostly boys), and it is caused by a mutation in the dystrophin gene. Dystrophin is a protein that is vital for muscle strength, and boys with DMD are missing this in their bodies. Their muscles gradually get weaker, which starts in their legs and progresses to the upper bodies. They are expected to be in a wheelchair by the age of 12, with life expectancy mid to late twenties.
George finds it hard to walk, run, climb stairs and keep up with his friends, although he loves to go swimming, horse riding, karate and ride on his bike which we are so grateful for. The exercise, steroids, nights splint on his legs and physio all help to keep him as strong as possible for longer, but we can see him getting weaker month on month. George is such a kind and caring boy and we are very proud of him and his achievements. Whilst George is weaker physically, he is amazingly strong mentally and emotionally, and so very brave! He doesn't know what the future will hold and we plan month on month, enjoying all the little things in life to the full. We pray that a cure for the disease will come in time that we never have to explain the future!
Share this story
Updates appear here
Barry Shorter started crowdfunding
Leave a message of support
Aug 2, 2018
Thank you Barry. You are a superstar! We are so grateful for everything you do. Xxx
Jun 29, 2018
Good luck on your ride Thanks for the training this week
Jun 29, 2018
Go on Barry!!!
Jun 8, 2018
Good luck Barry, don't be late for work Monday 😊 🚴♂️
Jun 7, 2018
Good luck mate, I know you can do it.....
May 26, 2018
Good luck Barry. I think I saw you training this morning along the 127
May 24, 2018
Become a supporter
Help Barry Shorter raise more