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Sherrien Gibson raised £380 from 12 supporters

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Closed 13/01/2019

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£380raised of £200 target by 12 supporters

    Weʼve raised £380 to Supporting Freddie and Louie Dawkins and raise money for research into CLN5 Batten disease. www.battlebatten.com for more information

    Nottingham, UK
    Funded on Sunday, 13th January 2019

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    Story

    On 29th September I’ll be travelling with my friend Ali to Vietnam where we’ll begin our ten day journey to cycle (on mountain bikes!) a sweltering 500km (310m) from Ho Chi Minh to Angkor Wat in Cambodia, a challenge I’m doing to help raise awareness and critical funds for a special campaign that is very close to me - ‘Battle Batten’.

    Good friends of mine and parents of two special boys started the Battle Batten campaign 4 years ago to raise funds for research into the extremely rare condition their twin boys Freddie and Louie suffer from - late infantile variant CLN5 Batten disease, a genetic, and cruel neurological condition.

    This is the biggest challenge I have ever undertaken with the humidity and heat there to remind us of the challenge the children we’re supporting go through every day! Training for months with cycling, boot camps and weekly PT sessions I’m hoping I’ve built enough stamina just to survive!

    Freddie and Louie, 13 years old in September 2018, are the only known identical twins in the world that suffer from CLN5 Batten Disease and I invite you to follow the link below to learn more about this cruel disease.

    The most compelling thing for me has been that in 5 years, the family have themselves raised an almost phenomenal £150,000 privately funding multiple research projects through British universities because there is little or no other funding. Their determination has made such a difference, with one drug trial already taking place, and I’d like to help keep the momentum through awareness and funding. www.battlebatten.com

    I have fully funded the trip myself, so 100% of the money raised will go to the Battle Batten campaign.

    Any advice on how to get through this (and keep my bottom in the saddle)! would also be gratefully received!

    Thank you for taking the time to find out more about Battle Batten :)

    Updates

    4

    • Sherrien Gibson3 months ago
      Sherrien Gibson

      Sherrien Gibson

      3 months ago
      Update from the Page owner

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    • Sherrien Gibson4 months ago
      Sherrien Gibson

      Sherrien Gibson

      4 months ago

      Update from the Page owner

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    • Sherrien Gibson4 months ago
      Sherrien Gibson

      Sherrien Gibson

      4 months ago

      509km - Ho Chi Minh to Angkor Wat done!👏🏻.Can't believe what a challenge this has been, every terrain you can imagine, even some you can't!, It's been a fantastic team effort supporting each other. It's been wet, it's been hot but we have all laughed through it. This is an experience I'll never forget & I have made some amazing friends along the way.Thank you to all of you who have supported me, the wonderful messages of encouragement and for taking the time to learn more about Battle Batten & for supporting an amazing family 😘

      Update from the Page owner

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    5 months ago

    Sherrien Gibson started crowdfunding

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    Page last updated on: 11/25/2018 08.46

    Supporters

    12

    • Krystyna  Fisher

      Krystyna Fisher

      Oct 9, 2018

      Amazing. Very well done - an experience of a lifetime. My hubby did a 400 mile cycle ride from London to Amsterdam a couple of years ago for motorneuron disease in memory of Bill Hislop. Xx

      £10.00

    • Jeanette Bonser

      Jeanette Bonser

      Oct 8, 2018

      Well done !!!! proud of you love Netty and Derek xxxx

      £50.00

    • Andrew Gibson

      Andrew Gibson

      Sep 27, 2018

      Chúc may mắn và chuyến đi an toànSo proud of you. x

      £20.00

    • Kaye Thompson

      Kaye Thompson

      Sep 22, 2018

      This is such an amazing thing to do. Good Luck Hun lots of love The Thompson’s xxx

      £10.00

    • William Forster

      William Forster

      Sep 18, 2018

      What an amazing challenge, best of luck, I’m sure you’ll ace it!! ❤️

      £30.00

    • STEVE CAMPBELL

      STEVE CAMPBELL

      Sep 18, 2018

      Good luck mate I’m sure you and Ali will smash it! ❤️

      £50.00

    • Anna Dennett

      Anna Dennett

      Sep 18, 2018

      Wow, just wow. You are truly one of a kind and we are so honoured to call you a friend. Best of luck, we’ll both be thinking of you 😘Lots of love, James & Anna xxxxx

      £50.00

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    About Crowdfunding
    About the fundraiser
    Sherrien Gibson

    Sherrien Gibson

    Nottingham, UK

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