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£290raised of £200 target by 8 supporters

Weʼre raising £200 to Supporting Freddie and Louie Dawkins and raise money for research into CLN5 Batten disease. for more information

Nottingham, UK

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On 29th September I’ll be travelling with my friend Ali to Vietnam where we’ll begin our ten day journey to cycle (on mountain bikes!) a sweltering 500km (310m) from Ho Chi Minh to Angkor Wat in Cambodia, a challenge I’m doing to help raise awareness and critical funds for a special campaign that is very close to me - ‘Battle Batten’.

Good friends of mine and parents of two special boys started the Battle Batten campaign 4 years ago to raise funds for research into the extremely rare condition their twin boys Freddie and Louie suffer from - late infantile variant CLN5 Batten disease, a genetic, and cruel neurological condition.

This is the biggest challenge I have ever undertaken with the humidity and heat there to remind us of the challenge the children we’re supporting go through every day! Training for months with cycling, boot camps and weekly PT sessions I’m hoping I’ve built enough stamina just to survive!

Freddie and Louie, 13 years old in September 2018, are the only known identical twins in the world that suffer from CLN5 Batten Disease and I invite you to follow the link below to learn more about this cruel disease.

The most compelling thing for me has been that in 5 years, the family have themselves raised an almost phenomenal £150,000 privately funding multiple research projects through British universities because there is little or no other funding. Their determination has made such a difference, with one drug trial already taking place, and I’d like to help keep the momentum through awareness and funding.

I have fully funded the trip myself, so 100% of the money raised will go to the Battle Batten campaign.

Any advice on how to get through this (and keep my bottom in the saddle)! would also be gratefully received!

Thank you for taking the time to find out more about Battle Batten :)

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Sherrien Gibson

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    Page last updated on: 9/18/2018 7:40 PM



    • William Forster

      William Forster

      Sep 18, 2018

      What an amazing challenge, best of luck, I’m sure you’ll ace it!! ❤️




      Sep 18, 2018

      Good luck mate I’m sure you and Ali will smash it! ❤️


    • Anna Dennett

      Anna Dennett

      Sep 18, 2018

      Wow, just wow. You are truly one of a kind and we are so honoured to call you a friend. Best of luck, we’ll both be thinking of you 😘Lots of love, James & Anna xxxxx


    • craig smith

      craig smith

      Sep 17, 2018

      hope you get to your goal


    • Michelle Lawrence

      Michelle Lawrence

      Sep 17, 2018

      So proud of you Sherrien! I will have a nice cold glass or two of bubbles waiting for you when you get back. I can't wait to hear all about your adventure. Stay safe and enjoy it! Xx


    • Barry  Sutherland

      Barry Sutherland

      Sep 17, 2018

      Hey Sherrien, we discussed this last week and I didn't get round to asking you about this. Glad that you got this up and running. Well done hon. xx


    • Suzanne Jackson

      Suzanne Jackson

      Sep 17, 2018

      Come on Sherrien!


    Sherrien Gibson

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    Sherrien Gibson

    Sherrien Gibson

    Nottingham, UK

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