Walk for Caelan

On Tuesday 12th of June Iam donning my full fire kit , carrying breathing apparatus and covering the full distance of the sandstone trail in 1 day. (34 miles) A walk that is usually covered over 3 days. Iam looking to raise as much money possible for a brave little boy who deserves a break.

Caelan is a three year old little boy who has spent 23 months in hospital. He has a progressive muscle weakness called infantile Pompe disease. This means that Caelan can not sit up, walk or talk, he is fed through a peg in his stomach, he has very poor muscle tone in his arms and none at all in his legs. This is a terminal illness and there is no cure. Caelan currently receives treatment for it, once a fortnight. This helps slow the disease down but doesn't stop it. Caelan is currently in intensive care recovering from a common cold, this cold attacked his lungs which resulted in Caelan needing a tracheostomy or he would have passed away. This is Caelans fourth procedure in just 12 months. Now that Caelan has a tracheotomy getting him home should be easier than before, he won't need as many intensive care trips. Which means he should he home soon. Mum, Toni and Caelan spend most of there time alone at the hospital and rely on medical professionals to make there days a bit brighter. Caelan absolutely loves lights, music and electronics, so mum is looking to raise £5000 to give him the dream bedroom he deserves.

I want to help Caelan and Toni reach there target and get him home.

Toni has set up a Facebook page that now has over 4000 members.

Caelans journey to the stars https://www.facebook.com/groups/383911568703249/