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Ollie's Fund

Ollie's Fund is crowdfunding

0%
£17,972
raised of £25,000 target by 426 supporters

Weʼre raising £25,000 to help Oliver fight Duchenne Muscular Dystrophy.

North Norfolk

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Story

This is Oliver.

Oliver is happy, kind, clever, funny and hands down the best 8 year old kid I know.

In October 2020, when he was 7 years old, we received the devastating news that Oliver has Duchenne Muscular Dystrophy . A genetic condition that causes his muscles to waste away. There are no treatments and there is no cure that can stop the condition from wreaking havoc in his little body.

Hearing about the ways that DMD will effect him is devastation beyond belief. When I look at him, and he smiles back at me, it’s hard to believe that it’s true. In fact, it is near impossible.

But it is true.

A year ago, Oliver needing a wheelchair seemed like such a long way off and yet here we are…on the cusp of ordering an incredible Trekinetic, all terrain wheelchair that will give our gorgeous boy a level of freedom that he has never before known. And that’s all thanks to the incredible generosity and love shown by every single person that has donated to our Just Giving page so far. Thank Y O U.

At 8 years old, his body is already showing signs of what is to come. Things that the able bodied amongst us do without a second thought such as climbing the stairs, getting in the bath, getting in the shower and getting dressed have all become harder for him to manage independently - and just as he is reaching an age where being independent feels important too.

To give Oliver the independence that he craves so desperately, for as long as possible, we know that we need to start to adapt our home. Our first task is to create a downstairs wet room so that he doesn’t have to navigate the stairs as often or be lifted in and out of the bath by us. I know it sounds dramatic, but with your help, we can make a huge, huge difference to his quality of life.

I can’t make this go away for him. I wish with all my being that I could. I can’t change his fate and I can’t promise him that the future will be all that he dreams it will be. But what I can do is offer him (and us) hope. I can empower him with self belief and the tools to remain independent and grow in self confidence. Being disabled should not hold him back.

Please help us to make our little boy's dreams of independent living a reality.

Much love,

Louise, Andy, Oliver and Edie X

Ps... you can see Oliver trying out the Trekinetic HERE

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Updates

4

  • Ollie's Fund5 months ago
    Ollie's Fund

    Ollie's Fund

    5 months ago

    2/2 ...which is something that feels important to us. Being a kid with Duchenne is a tough gig & although he is a very happy & determined little boy we know that some things are far harder than they should be & even his home can be a limiting space. Making changes to Olivers home environment is an essential part of keeping him safe. Changes such as a downstairs bathroom, wider doorways so he can access all rooms & a garden he can get out into, to name just a few. Your support means SO very much to all of us. But especially to Oliver. XX

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  • Ollie's Fund5 months ago
    Ollie's Fund

    Ollie's Fund

    5 months ago

    1/2 I can't believe that we smashed our initial target of £16k. It has been an surreal week and we are feeling incredibly, loved, grateful & humbled. Due to you guys being amazing, we are going to be able to order his Trekinetic as soon as the funds clear in a few days time which is just fantastic. Watch out for regular updates! We were in two minds about what to do now, but have decided to carry on with our fundraising efforts and have increased the target. This means that we might have a shot at improving Ollies quality of life further...

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  • Ollie's Fund5 months ago
    Ollie's Fund

    Ollie's Fund

    5 months ago

    Cont… Your support in our fundraising efforts has been incredible we will all be forever grateful ❤️ Please know that any funds raised over an above the cost of his wheelchair (aka, freedom!) will go towards adapting our home to make it accessible for Oliver so that he can continue to feel safe, happy and independent. The things we all cherish the most. All our love, Louise, Andy, Oliver & Edie XX

    Update from the Page owner

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5 months ago

Ollie's Fund started crowdfunding

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Page last updated on: 5/19/2022 09.44

Supporters

426

  • Kathleen and David Britain

    Kathleen and David Britain

    May 19, 2022

    Sending you all lots of love xxx

    £50.00

  • Samantha Cahill

    Samantha Cahill

    Apr 1, 2022

    Given with lots of love x

    £20.00

  • Anonymous

    Anonymous

    Mar 30, 2022

    £5.00

  • Anonymous

    Anonymous

    Mar 30, 2022

    £10.00

  • Charlotte Turner-Sears

    Charlotte Turner-Sears

    Mar 30, 2022

    £10.00

  • Martyn Benstead

    Martyn Benstead

    Mar 7, 2022

    Good luck.

    £25.00

  • Gail

    Gail

    Mar 6, 2022

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Ollie's Fund

Ollie's Fund

North Norfolk

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