Liberty Mae was a Baby who was born with several problems with her Heart. Doctors thought she would pass soon after birth but Liberty Mae was a Heart warrior and fought hard for 4.5 months

Liberty Mae Fox

19/12/2024 - 29/04/2025

Raising funds to help pay for A Horse and Carriage and other things towards the Funeral, so Liberty Mae can have a beautiful send off she deserves.

set this up on behalf of Liberty Mae Parents Lisa & Graham

im adding the story about Liberty Mae 🪽🪽Here’s the story from Lisa ❤️

So it started at my 20 week baby scan I was told there was only two chambers of my babies heart instead of 4. I had to wait two long days before Leeds General Hospital could see me and scan me. We was told Libery had two life threatening heart conditions hyperplastic right syndrome and pulmonary atresia with intact ventricular septum. I was terrified as I was told neither of these conditions could be fixed they were operations to help give Liberty a better quality of life but not fix the heart and were not guaranteed and it would involve a stent inserting into Liberty's heart between 4-10 days of her life,two open heart surgeries and probably more operations and time in hospital along the way. The 1st open heart surgery only had a 60% percent chance of survival. I was also informed that they could find more complications wrong with Liberty's heart when she was born and they did a echo scan directly on her heart.Leeds told me when Liberty was born she would be blue, need oxygen, we would only have 5 minutes with her before they would put a medication into her to keep her heart valve open. They told me without this medication Liberty would die almost immediately. I was offered a termination at 21 weeks I said absolutely not I want to save my baby, I told Leeds Hospital both me and my baby were fighters and survivors and I believed in miracles. To which the doctor looked at me like rubbish and dismissed me.The rest of my pregnancy consisted of weekly scans at both Leeds and Halifax Hospital to monitor my baby. At around 32 weeks the scan showed Liberty wasn't receiving enough resistance through the cord so I was sent for more scans and under monitoring constantly.They decided they would induce me in Leeds. Then they never had a cot I ended up giving birth in Halifax Hospital which was scary as hell as they don't have the medical experience or equipment for Libertys severe heart conditions.Liberty was born on the 19th December weighing 7lb 2 she came 2 days early, her cord showed that she wasn't getting enough oxygen throughout my pregnancy, she didn't need any oxygen, she wasn't blue and we had longer than 5 minutes with her. And it took 2 hours for Halifax to get her medication in her and even then it wasn't in the right place.2 hours lately we was transferred quickly to Leeds Hospital for Liberty's full care. To be later told that day that they had done a heart scan and found 3 more complications with Liberty's heart. Patent ductus arteriosus/ Atrial septal defect/ Right ventricular dependent Coronary circulation .We was told that they couldn't save Liberty or do any operations all these conditions together were rare they had never seen them before and to take her home to spend the rest of her life together.We asked for a 2nd option Birmingham who agreed with Leeds. We got this devastating news on Christmas eve and I had to tell my other 3 children that their sister was going to die.We pleded we begged. Could they do anything? A heart operation? A heart transplant? We would pay private?we was told nothing but to go home and was told Liberty may not make the journey home, she may last minutes, hours, days or weeks.

We left hospital 8 days later and came home on the 27th December. I slept with my hand in Liberty's moses basket not expecting her to be their in the morning.Days went by, weeks. We went back for heart scans.Leeds couldn't believe it we kept asking she's stronger can u do anything? Heart transplant etc but was told no because of the pressure of Liberty's heart it was too bad and if it moved too high or too low she would suffer a massive heart attack.They also told us due to the coronary arteries a heart transplant wasn't possible.So weeks went by and even months we continued to visit Leeds to check Liberty's heart, Leeds were speechless to why she was still here her sats were averaging 65 which is dangerously low.Then we went to Leeds once more and I didn't like their attitude and approach and I decided to switch hospitals for Liberty's care and with lots of advice we took her to Newcastle Heart Hospital.As soon as we got there the care was different they showed my daughter care, compassion, empathy the consultant sat us down explaining Liberty's heart and the seriousness of her conditions and how rare it was. ( to this day I cannot find anyone with all these heart conditions together. 1 of the conditions alone there is about 1 in 10,000 people who have it).But they gave us a little bit of hope and offered us a heart transplant assessment. I was confused because Leeds had told me time and time again Liberty wasn't eligible.So we agreed and spent 3 days in total in Newcastle for Liberty to have a ct scan, 20 tubes of blood was taken, she has a echo, a ecg, various ultrasounds and 2 days later we got a call to tell me she was eligible. I was speechless they put my daughter on the heart transplant list at age 15 weeks old. The youngest I believe in the UK.was confused Leeds had told me time and time again she wasn't eligible due to her Cornory atrties, yet Newcastle had told me if she wasn't eligible it would be due to the size of her pulmonary ( this is the part of the heart that pumps blood to the lungs) Liberty's measured 4mm yet its meant to be 10mm.Finally we had some hope we spoke to the heart surgeon in Newcastle who explained this was a very high risk heart transplant and it wasn't guaranteed due to Liberty's size, age and heart complications but if we was willing to give it a go then they was too.I asked the surgeon about Liberty's conditions and she looked at me and said she's a miracle she shouldn't be here and was doing amazing. She also told me they wanted to try a brand new machine that preserves hearts longer and keeps them differently ( forget the name) and Liberty would be the youngest baby in the world to have this heart transplant this way. But it meant more opportunities for saving other babies so we was willing to do this because without a new heart Liberty had no chance of surviving.

Sadly my daughter got bronchitis last week and we think the strain attacked her heart and she sadly passed away just before she was 18 weeks old on the 29th April in Halifax Hospital she fought to the very end and even after her sats were 5 and she had no oxygen or anything she still continued to fight and breath and survive for another 3 hours in my arms before she fell asleep.I will miss that little girl more than anything she was my entire world 🌎 The best daughter anyone could wish for.I thought we would get a new heart and fix her it was a massive risk but we was prepared to chance this to save her.Sadly we didn't make this moment.But Liberty has touched so many peoples hearts in her short time on earth, she's shown me bravery strength and inspiration. I couldn't have had all the tests and being wired to machinery that she was. i just wanted to share her story and our journey with you. My daughter was a miracle

my love goes out to Lisa, Graham, and the rest of the family 👼