Nella was born on 27th of August 2024. She appeared to be a very healthy baby when she was born, however, before we were discharged from hospital the doctor completed all of Nella’s checks and tests and found a heart murmur stage 3 when looking at her chest. Following on from that week we had an appointment at the hospital for an echo scan, the doctor found something but he wasn’t sure what it was, so he had to get in contact with Leeds Hospital and on the same day we was rushed to Leeds in the early hours of the morning , Nella had another echo scan in Leeds where they found that she has got a very rare heart condition called Congenitally Corrected Transposition of the Great Arteries. This means that the left ventricular, which normally pumps blood around the body , only pumps blood as far as the lungs. The right ventricular which normally pumps blood to the lungs is now having to pump blood around the body. The right ventricular is now under pressure to maintain circulation to the rest of the body and this can lead to right sided heart failure. Nella has also been diagnosed with 2 other conditions and one of them is Pulmonic stenosis. This narrowing of the pulmonary outflow tract causing obstruction of blood flow from the right ventricle to the pulmonary artery during systole. Lastly found was the Ventricular septal defect sometimes referred to as a hole in the heart is a type of congenital heart defect. There is an abnormal opening in the wall between the main pumping chambers of the heart . Nella will need to go for frequent hospital appointments to Leeds hospital.

These appointments will continue for the future along with hospital stays and the possibility of surgery, Nella is monitored weekly by nurses that visit the family home in between hospital visits. With these frequent hospital appointments and overnight stays in hospital, the cost that comes with this is challenging.

They also have a 5 year old daughter who is trying to adapt to these changes within her life of mum and dad being away from home more and wondering how her baby sister is.

Nella's parents are having to take a lot of time off work, with accruing costs to travel, expenses in hospital and round-the-clock childcare for their other daughter. In light of this, we have decided to fundraise to help and support this lovely family on their journey ahead with Nella.