Hi my name is Bill and I have been FIGHTING Guillain Barré Syndrome/ CIDP since August 2013. I have been left in misery now because I feel TRAPPED INSIDE so often, restricted in so many ways by a body that could be improved if I had professional help with extended physio and rehab - but this is not possible without funding so I am reaching out to others in the hope I can try and improve my quality of life again. When I suddenly became ill I had to spend extended time in hospital and intensive care, I was left paralysed with no use of hands and legs. Going into 2019 it is my hope to tackle the disabilities GBS has left me with head on with some concentrated and specialised physiotherapy and rehabilitation sessions. This is what I desperately need to give me a chance to walk unaided again on the 2 dropped feet I now have and with the muscle wastage and nerve damage to my legs. I have made some progress but know and believe with the correct treatment this could be possible and this is why I am now asking for HELP.

I used to have a car showroom, be a driving instructor, property developing - Workaholic ! Having to take a back seat in life now is heart-breaking for me, to have my legs back working as they should would be life-changing. My strength to stand for long periods and balance is limited although I can take steps with crutches so much more could be achieved if I could have the physio and rehabilitation to enable me to walk again properly.

CIDP has left me like this, CIDP stands for Chronic inflammatory demyelinating polyneuropathy, this is believed to be due to immune cells, which normally protect the body from foreign infection, incorrectly attacking the nerves in the body instead. As a result, the affected nerves fail to respond. This causes loss of movement in varying degrees to patients, pneumonia and several other complications tried to end my life but I am still here FIGHTING.