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Haydon & Kayleb raised £17,614.83 from 3590 supporters.

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Closed 10/07/2018

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£17,614raised of £15,000 target by 3590 supporters

    Weʼve raised £17,614 to Help with therapy and care for our Five year old little Brother Blake who has been taken ill with a rare Brain Disease

    Kingston upon Hull, Hull, UK
    Funded on Tuesday, 10th July 2018

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    Story

    My name is Haydon and my brother Kayleb is helping to write this too.

    Our brother Blake has been in hospital for over 4 months now and we do not know when he will be coming home to us. He has just turned 5 while in hospital and before he was taken ill in February this year he was a lovely little playful brother, he loved to tease us and loved paw patrol.

    We need to raise some funds to help towards providing him with some equipment to help him be more comfortable and to help him with rehabilitation and to recover faster. we know the amount we have put to raise will only cover a small amount of equipment and therapy but we wanted to be realistic as a target. If we raise more that would be amazing.

    He has a very rare condition called ANE [ Acute Necrotizing Encephalopathy ] Grandad wrote that bit and the story of what happened to Blake below.

    Hi I am Kayleb I am 6 and I love my brother Blake so much and I miss him and I can't wait to see him so I travel to Sheffield Hospital as much as I can. I know he is very poorly and when he comes home he will need a lot of care and I will play with him lots. if you can help us make his life easier and more comfortable at home please donate thank you.

    This is how we wish it was again but know Blake is too poorly to play cheese touch with us.

    He is moving to another place past London and we will not see him for ages which is really annoying but know its best for Blake.

    We don't know if Blake can see, but we think he can hear us. He cannot move or even eat so is fed with a tube to his tummy. He has been lent a wheelchair which does not fit him properly and is hard to push outside. We are separated from our mummy as well as Blake and are being looked after by our Grandma & Grandad. When Blake and Mummy move to Tadworth we will have to wait for weeks to visit as it is so far away and expensive to stay so will miss our time together. If anyone can help with advice on places to stay near there please let my granddad know.

    Thank you for reading our page and I hope you can share with others.

    Blake' s journey so far:

    4 year old Blake visited the Dr's as he was unwell and they said it was a stomach bug/ virus. Within a 24 hr period Blake became so weak he couldn’t hold his own head up, he could hardly speak he began to slur his words he then lost his sight and became unresponsive. He went into Hull Royal Infirmary on the 2nd February 2018, with medics believing he had meningitis. Blake deteriorated further and was put into a medically induced coma.

    They then transferred Blake to Sheffield Children’s Hospital where he currently remains fighting every step of the way. each day brings its own challenges for Blake and all the family. Blake will be moving to Tadworth in the coming weeks which will mean the family will be separated for even longer periods of time.

    Blake has Acute Necrotizing Encephalopathy which is a rare brain disease so rare there are only 150 cases documented, mainly being in Asia, heartbreakingly this disease carries a prognosis of 30% survival rate and only a 10% recovery rate but always left with some form of brain damage sadly there is no known cure only supportive treatment, Blake was a happy healthy little boy attending school prior to catching this rare disease.

    We have been told by the hospital we need to pay for speech and language therapists and also need to buy specialist equipment for Blake which is not funded as well as further treatments to enable Blake to be comfortable.

    Updates

    1

    • Haydon & Kayleb4 months ago
      Haydon & Kayleb

      Haydon & Kayleb

      4 months ago
      Update from the Page owner

      Big thank you

      Share this update to help us raise more

    4 months ago

    Haydon & Kayleb started crowdfunding

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    Page last updated on: 6/10/2018 1:44 AM

    Supporters

    3590

    • Anonymous

      Anonymous

      Jun 10, 2018

    • Anonymous

      Anonymous

      Jun 9, 2018

    • Anonymous

      Anonymous

      Jun 9, 2018

      I was touched by your story. I pray that Allah gives little Blake a full and speedy recovery.

    • Sohail Hussain

      Sohail Hussain

      Jun 9, 2018

      £30.00

    • Anonymous

      Anonymous

      Jun 8, 2018

      I hope he recovers fast!

    • Anonymous

      Anonymous

      Jun 8, 2018

    • Anonymous

      Anonymous

      Jun 8, 2018

    Great people make things happen

    Do you know anyone in need or maybe want to help a local community cause?

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    About Crowdfunding
    About the fundraiser
    Haydon & Kayleb

    Haydon & Kayleb

    Kingston upon Hull, Hull, UK

    Our little brother is so special and we miss him so much, he was taken ill in february 2018 and we thought it was just a bit of cold. Even the Dr said it was just a virus and they are supposed to be clever.

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