Weʼre raising £50 to I have entered a boxing event to raise money for a wonderful little lad called Rhys read the story for more details and help him smile
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Rhys Williams is a 13 year old who suffers from epidermolysis bullosa. This is rare genetic skin condition where no collagen 7 is produced. In easy terms his skin falls off. Any knock, bump or friction can cause skin loss creating large open wounds or even blisters that don‘t stop growing. Even a cuddle can cause trauma. His hands and toes have webbed and fused due to wounds that have healed and he’s now wheelchair bound due to his hips fusing. Most days the pain is very intense but despite all this Rhys is a happy boy much of the time.
The life expectancy for someone with epidermolysis bullosa is around 25 years as they have a high chance of developing skin cancer which causes many deaths in people with this condition. Infection and flu also cause many deaths in people with epidermolysis bullosa.
Rhys’ dream is to go on holiday to Florida so any money raised will go towards this goal.
I will start training for the boxing event on 10th April with elite boxing gym, the final match will be held on 15th June I will post updates and links for tickets closer to the time. Any help to get to my target will be very appreciated
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Apr 7, 2019
Good luck bobbie you'll smash it. Lots of love me and the kids xxx
Apr 7, 2019
Go knock em out, will be rooting for you, and all for a good cause
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