Update: Emily has had her surgry BUT unfortunately our youngest daughter Megan has been diagnosed with border libe severe scoliosis with a double curve of 21 degrees and 39.6 degrees. She has been referred to NHS but waiting times sit at around 18 mobths to be seen and braced and goodness knows how much she will of progressed by then so we decided to take her to Turkey and she was braced within 24 hrs. She will need follow up and new braces every 4-6 mths and may still need surgery. SO our fundraising continues 😢😢😢

My Daughter Emily age 12 was diagnosed in March with Scoliosis 40 degree curve we had to go private due to the length of time between gp referral and initial consultation at Musgrave. Since then covid struck and services were halted though progression of scoliosis does not halt. Most services are now all back up and running though scoliosis clinics have still not resumed. WHY??? Our children have been left on the shelf with no means of help, this infuriates me, lots of other parents, consultants and nursing staff alike.

Emily was to be seen again in June but due to no clinics taking place we had to go private for a second time to be told her curve has now increased to 50 degrees with a Severe trunk shift which in turn causes her a lot of pain and discomfort. She has now been placed on the waiting list for spinal fusion surgery with no indication of waiting time. How long is a piece of string?

If my daughter was an animal she would not be left to suffer. This is not only affecting them physically but also affecting their mental health and well being

Also any extra will be donated to Megan's Wish charity a charity very close to our heart who goes above and beyond for children with scoliosis and their families.

Thank you to everyone who has taken the time to read our story.