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£290raised of £350 target by 27 supporters

Weʼre raising £350 to help towards raising the £400,000 needed to get little Ebonie to America for cancer treatment.

Newton Abbot, UK

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Story

Ebonie was diagnosed with Philadelphia chromosome positive leukaemia in February 2016, a rare subtype to acute lymphoblastic leukaemia. She underwent very high dose chemo for a year, losing her hair 3 times, the ability to walk for a time and had many hospital admissions for infection and low blood counts. In October 2017, she relapsed in the CNS (central nervous system) and again went into have gruelling chemotherapy and high dose chemo injected into her spine to bring her into remission to them go forward for a bone marrow transplant. For the transplant she had 4 boosts of cranial radiation and 6 rounds of total body irradiation then her brothers cells in January 2018. Unfortunately 4 months after this she has relapsed again in the CNS. Due to the timing of relapse her options are slightly limited.

Most treatments/trials are available to children that are 6 months post transplant. Because of this she may need to go to America to join a trial which is going to cost around £400,000.. this will cover all the trial costs, cells, daily care, blood tests, pokes, everything you can imagine needs doing that we take for granted due to the nhs. Also it will cover flights and accommodation whilst there.

Before we know about treatment in America we need to try to get funding for a specific medication targeting the Philadelphia chromosome called dasatinib.. our understanding is that rarely the uk will fund this and we will need to pay for it ourselves, the cost being between £3000 & £4000 a month. This medicine will be needed for months but possibly even years..

Our aim is to get Ebonie into remission ready to start a trial whether it be in the uk or America.

I am shaving my hair off on 6th Aug to help raise money for Ebonie and I ask if people can please make a donation, no matter how small to help this brave little figther. Thank you. Xx

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Bronnie Roberts

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    1 month ago

    Bronnie Roberts started crowdfunding

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    Page last updated on: 8/9/2018 4:24 PM

    Supporters

    27

    • Bronwen Roberts

      Bronwen Roberts

      Aug 9, 2018

      From mum. Xx

      £10.00

    • Bronwen Roberts

      Bronwen Roberts

      Aug 9, 2018

      From Auntie karen xx

      £20.00

    • Wendy McHugh

      Wendy McHugh

      Aug 7, 2018

      Well done prreeeeety lady... Hope this helps xxxxx

      £5.00

    • Magda

      Magda

      Aug 7, 2018

      Well done Bronnie! I hope all goes well for little Ebonie. Xxxx

      £10.00

    • Leah Sayer

      Leah Sayer

      Aug 7, 2018

      It's only a small amount but your doing a wonderful and I wish ebonies the best xx

      £5.00

    • Anonymous

      Anonymous

      Aug 7, 2018

    • Jane Newport

      Jane Newport

      Aug 7, 2018

      Well done Bronnie

      £5.00

    Bronnie Roberts

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    About the fundraiser
    Bronnie Roberts

    Bronnie Roberts

    Newton Abbot, UK

    I am shaving my hair off on 6th Aug to help raise money for this beautiful and brave little girl. Friends and family are welcome to come a long and witness this spectacle or maybe even help cut some hair off.

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