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Bronnie Roberts raised £300 from 28 supporters
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Closed 15/11/2018
Weʼve raised £300 to help towards raising the £400,000 needed to get little Ebonie to America for cancer treatment.
- Newton Abbot, UK
- Funded on Thursday, 15th November 2018
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Story
Ebonie was diagnosed with Philadelphia chromosome positive leukaemia in February 2016, a rare subtype to acute lymphoblastic leukaemia. She underwent very high dose chemo for a year, losing her hair 3 times, the ability to walk for a time and had many hospital admissions for infection and low blood counts. In October 2017, she relapsed in the CNS (central nervous system) and again went into have gruelling chemotherapy and high dose chemo injected into her spine to bring her into remission to them go forward for a bone marrow transplant. For the transplant she had 4 boosts of cranial radiation and 6 rounds of total body irradiation then her brothers cells in January 2018. Unfortunately 4 months after this she has relapsed again in the CNS. Due to the timing of relapse her options are slightly limited.
Most treatments/trials are available to children that are 6 months post transplant. Because of this she may need to go to America to join a trial which is going to cost around £400,000.. this will cover all the trial costs, cells, daily care, blood tests, pokes, everything you can imagine needs doing that we take for granted due to the nhs. Also it will cover flights and accommodation whilst there.
Before we know about treatment in America we need to try to get funding for a specific medication targeting the Philadelphia chromosome called dasatinib.. our understanding is that rarely the uk will fund this and we will need to pay for it ourselves, the cost being between £3000 & £4000 a month. This medicine will be needed for months but possibly even years..
Our aim is to get Ebonie into remission ready to start a trial whether it be in the uk or America.
I am shaving my hair off on 6th Aug to help raise money for Ebonie and I ask if people can please make a donation, no matter how small to help this brave little figther. Thank you. Xx
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Supporters
28
Bronwen Roberts
Aug 18, 2018
From Nai nai. X
£10.00
Bronwen Roberts
Aug 9, 2018
From mum. Xx
£10.00
Bronwen Roberts
Aug 9, 2018
From Auntie karen xx
£20.00
Wendy McHugh
Aug 7, 2018
Well done prreeeeety lady... Hope this helps xxxxx
£5.00
Magda
Aug 7, 2018
Well done Bronnie! I hope all goes well for little Ebonie. Xxxx
£10.00
Leah Sayer
Aug 7, 2018
It's only a small amount but your doing a wonderful and I wish ebonies the best xx
£5.00
Anonymous
Aug 7, 2018
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Bronnie Roberts
Newton Abbot, UK
I am shaving my hair off on 6th Aug to help raise money for this beautiful and brave little girl. Friends and family are welcome to come a long and witness this spectacle or maybe even help cut some hair off.