Weʼve raised £10 to Help Fund My Terminal ill Little Sister Travel To Great Ormond Street Battling With Battens Disease For Treatment To Prolong Her Little Life
- Funded on Tuesday, 27th December 2016
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Kaycee is 4 years old From Sutton St Helens Merseyside she has been diagnosed with a rare brain condition called Battens disease, she will sadly not live past 9 but hoping till 12/13 with enzyme treatment, luckily for us she has been accepted on to the treatment this year starting end of this month and has to attend Great Ormond Street hospital, London every 2 week for upto a year or more. We are trying to raise funds for a last family holiday and more importantly for Expenses to London and back every fortnight. It's so rare this disease that only roughly 20 people in Britain with it and less than 300 in the world, Please can you help any way and there has been many media organisations coming through now to bring awareness for this disease and St. Helens papers and community's are coming together holding many fundraising events 🙂
Thanks for reading
Updates appear here
Bryan Turner started crowdfunding
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Nov 28, 2016
I know two wonderful little boys who suffer with this horrible disease. Wishing you all the best luck in the world with the treatment and hope you make lots of wonderful memories on your holiday ❤️
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