Weʼve raised £290 to help Buzz get life-changing stem cell therapy.
- Funded on Wednesday, 18th September 2019
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This October I am doing something I said I never would... I am running a half marathon, Cardiff Half Marathon. Despite the word 'half' being in the title, it is a long way and it is going to take A LOT of training to get me round.
My nephew Buzz is the reason I am doing this, he has been dealt a tough and unfair hand, which is detailed below. His family have now been given a chance to recieve treatment which should help Buzz with his pain, development and life expectancy. It is so important that Buzz gets this chance so I am asking you, friend, family member, stranger who has stumbled acrossthis page, to please sponsor me to do something crazy for a pretty awesome guy. This £400 will contribute to a larger fundraising target of £55,000.
In December 2015, Buzz Rowswell was born full-term and healthy. But a few days after leaving hospital he fell very ill due to untreated new-born jaundice, which unfortunately resulted in a permanent brain injury.
Buzz's brain injury is called 'Kernicterus' and effects less than 1 in 100,000 children and is classed as a ‘never event’ (as in it shouldn’t happen) in many modern countries, as the professionals have all the necessary means of testing and treating jaundice.
However, our hospital and local community service neglected to take Buzz’s jaundice seriously and our little guy is now left battling with the consequences every day of his life.
Luckily for us, Buzz is a real fighter and after being given a small percentage of survival he beat the odds. But sadly due to his brain injury he has severe cerebral palsy and can’t crawl, walk, talk or sit up unaided... yet!
Due to his injury, Buzz also has a rare type of hearing loss called auditory neuropathy spectrum disorder (ANSD). In addition to this he also suffers with a lot of pain from constant muscle spasms and has an unsafe swallow so has to be fed and given his medications through a peg feeding tube directly into his tummy. As a result of all this Buzz has been classed as life limited.
Buzz and his amazing mum Vikki, me and big brother Roo work relentlessly every day on a range of therapies and activities including physio, speech & language, occupational therapy, hydrotherapy, rebound therapy and many other activities to help Buzz progress in life.
But more can be done and we are trying to raise £55,000 in total so Buzz can take a series of trips to Panama for life-changing stem cell therapy, something that the NHS will not fund. We are hoping to have raised £5,000 through other fundraisers and kind donations and to raise the rest through here. For the latest updates see the Buzz's Battle Facebook page.
This type of stem cell therapy would mean injecting stem cells into Buzz to help repair some of the damaged tissue in the brain. As with any therapy there are no guarantees, but other children with the same brain injury have seen incredible results with one of Buzz’s Kernicterus friends starting to sit independently, say words and most importantly suffer a lot less pain.
So, how can you help? Quite simply by helping to fundraise through a challenge or simply just by donating here.
We just want to give Buzz the best chance at having a happy, healthy and long life and with your help we can.
Thank you so much on behalf of Buzz. xxx
Updates appear here
Stephanie Benson started crowdfunding
Leave a message of support
Sep 11, 2019
Go Steph!!! What an amazing thing to do - Buzz sounds like an incredible little man. Will be cheering you on from down under Xxx
Charlotte O'Brien Gore
Sep 2, 2019
Well done Steph for raising so much money for this courageous child! Your hard work and dedication to the cause is so respectable! Wishing you and Buzz all the best <3 Keep up the amazing work!
Aug 18, 2019
Go on Jeff! Don't let the chafing stop you
Aug 16, 2019
You and Buzz are amazing Steph! All the best! xxx
Aug 16, 2019
Well done Steph! You're amazing xx
May 31, 2019
What an amazing little guy! Best of luck with your fundraising Steph! x
May 30, 2019
Wow, well done Steph, good luck and what a sweet little boy xx
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