If you were diagnosed tomorrow with a cancer that had a survival rate of less than 15% you may feel scared, shocked, frightened for the future.

The likelihood is you would worry about those you may leave behind, making memories would probably be high on your agenda.

Shockingly there is no research into what the palliative care of those young people who are diagnosed with cancers with this prognosis should look like. It means that all too often people don’t know what their choices are and medical teams are left wondering how to balance the risks whilst allowing people to truly live.

Capture aims to change that by funding research into what young people want out of palliative care, producing information that those diagnosed can be given and guidelines and training for medical teams into ensuring people get to make the most out of the life they lead.

A short life can still be an incredible one.

This time last year my cousin Liz Hatton was living with Desmoplastic Small Round Cell Tumour, a rare and aggressive sarcoma with a prognosis that hasn’t changed in the last twenty years. Liz lived just 10 months after her prognosis - but it was 10 months in which she truly lived. Her medical team in Leeds were brave, they allowed Liz to travel and at the end of her life they shared her care with a team of incredible nurses in London. Liz took photographs of movie stars and west actresses, she met the Prince and Princess of Wales and rode roller coasters. Liz spent her life Living not dying.

As Liz’s family we are determined to give other young people that chance.

But we need your help to do this. This August I’ll be taking part in Marathon Your Way In A Month - covering 26 miles over 31 days. Please do consider sponsoring me - even small amounts add up - or joining me on my mission.

You can sign up to Marathon In A Month Here: https://form.typeform.com/to/KajKdqms

Or find out more about Capture’s work on Instagram or X via @CaptureDSRCTC or Facebook https://www.facebook.com/people/Capture-Desmoplastic-Small-Round-Cell-Tumour-Charity/61575831703759/

Together we can make a difference to people facing the unimaginable.