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Carli Jazmine Cooper raised £665 from 12 supporters


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Closed 15/08/2018



£665raised of £2,000 target by 12 supporters

    Weʼve raised £665 to To Raise Travel Money To Get To The States & Document My Journey To Encourage Others & Raise Awareness Of EDS & my Disabilities

    Tunbridge Wells, UK
    Funded on Wednesday, 15th August 2018

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    Hi, im Carli - firstly thank you for taking the time to read my story. About 7yrs ago, i started to notice i was feeling exhausted but put it down to stress & just carried on.

    In 2012 i was diagnosed with Chronic Fatigue Syndrome/ME - i became unable to work & was so unwell i was often in bed unwell for weeks but i was too afraid to mention anything to my friends & family about it as its an often misunderstood but can be extremely debilitatiing

    From then onwards the diagnoses kept coming & my health spiralled out of control. Six days before my 30th birthday i had problems with my legs & went into A&E- i came out on crutches and within 6 months i was relying on a powered wheelchair- unable to self propel due to the severity of my conditions. I was sent to the top hospitaks in the UK & am currently under the care of the top consultants at Kings College; Univeristy College Hospital London; Guys & St Thomas’; Eastbourne, Maidstone & Tunbridge Wells hospitals for my varying multiple conditions.

    After 5-6yrs of tests; and suffering from Two “Invisible Ilnesses” as well as severe Psoriatic Arthritis, HyperLordosis, severe Synovitis & Osteoperosis- i inject 20mg subcutaneous Methotrexate every Tuesday as it is the only medication that can help with my arthtitis

    Unfortunately there is no cure & very limited treatments & little understanding of Ehlers Danlos Syndrome - i have Type III (Hypermobile) although i also have symptoms of several other types including Classical & Vascular

    All different types of EDS are caused by faults in certain genes that make connective tissue (basically everything apart from bones) weaker. The faulty gene may be inherited from one parent or both- sometimes it can occur in someone for the 1st time. EDS can affect everybody in different ways from relatively mild, some disabled & in rarer cases life threatening. I fall into the middle category - however the top EDS specialist in the UK has seen me & considers me a “complex case”

    I have joint hypermobility, loose unstable joints that dislocate easily, extreme fatigue, skin that bruises easily, digestive problems (i also have severe Bowel problems & am under a top consultant bowel surgeon at St Thomas’) Dizziness & increased heart rate after standing up (I also have the heart condition Postural Orthostatic Tachycardia Syndrome which im on meds for) I hadnt heard of EDS until i was diagnosed with it & as part of my journey i would like to raise awareness of this condition so that more research can be done to better help others with the varying types of these conditions

    Unfortunately, every condition i have is progressive; degenerative & incurable

    There is very little that can be done to help me medically anymore, and my health is getting worse & worse- including my mental health

    Ive been housebound and basically bedbound for the last 6yrs- even though i still do more every day than im supposed to to push myself & push my limits rather than give into my fate.

    I love life & all i want to do is live every day like its my last & make the very most of every monent as i take none of them for granted

    I want to start a Youtube channel & document my entire journey in the hopes of showing others that if i can do it- anybody can & to try to be as entertaining for those who find it difficult to leave the house due to physical or mental health reasons

    Ive never asked anyone for any help, and have spent years raising money for other charities - but as im starting to struggle more; im increasingly aware that there is a time limit

    ive missed out on so much- i just want to get out into the world & try to find my place in it- and if there is no place for me- then lets carve one together ;)

    All im asking is would you buy me a drink on a night out? If you could spare anything from a couple of quid to £10 it can make a world of difference to me

    There are no treatments, or cures for me; and i accept that- but i truly feel like i need to do this for ME for the first time in my life

    Thank You from the bottom of my heart for taking the time to read my story & if youre able to contribute in any way- im eternally grateful 🙏🏼😘💯♿️💜✌🏼🌟🎶🌈🦄✨

    All My Love Always Carli x



    • Carli Jazmine Cooper6 months ago
      Carli Jazmine Cooper

      Carli Jazmine Cooper

      6 months ago

      Firstly - THANK YOU SO VERY MUCH for your kindness & donations & messages of support It may seem that this appeal isn’t as worthy as many of the others who are raising money for treatment- however the reality for me is that there is NO treatment that can help me- rather than give up; Im trying to put a positive spin on an impossible situation whilst trying to help others in the process. Ive not asked anything in all these years- now Im pleading- please help me🙏🏼😔I just want to live the best life I can every donation helps Tysm x💜LoveUAll

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    • Carli Jazmine Cooper6 months ago
      Carli Jazmine Cooper

      Carli Jazmine Cooper

      6 months ago
      Update from the Page owner

      I’m blown away by your kindness & support & I will repay you in smiles & keep each of you in my heart every moment of my journey x You’ve got me crying at your compassion! So much love & many many hugs Carli xx🙏🏼😘💜♿️🙌🏼😁🌈🦄🌟

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    • Carli Jazmine Cooper7 months ago
      Carli Jazmine Cooper

      Carli Jazmine Cooper

      7 months ago

      I treasure these incredible mementos from some of the happiest times of my life which all came from losing the love of my life It was a local Battle of The Bands at our amazing live music venue The Forum in Tunbridge Wells We have our own T-Shirts & Logo & I got to meet so many incredible people x The money from my 1st 2 public gigs founded it in Jan 2009 & every event I was compering onstage - it was so amazing x We helped raise money for Starlight- which was Jake’s family’s chosen charity- I even ended up in a documentary for Starlight 🎶🌟

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    7 months ago

    Carli Jazmine Cooper started crowdfunding

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    Page last updated on: 6/11/2018 10:25 PM



    • Denise Jones

      Denise Jones

      Jun 11, 2018

      Hi Carli, Really hope you hit your target my darling girl! You so deserve it. I know it's not much but I hope it helps a little towards getting you there. Love you always Xx


    • edward railton

      edward railton

      Jun 11, 2018

      This will be amazing and an inspiration to othersDeff Tap up dan Worthington if you’re in/near L.A he’ll show you a good time :)Can’t wait to tune into your adventures channel Lots of love xx

    • Karly Day

      Karly Day

      Jun 9, 2018



    • Rona Saunders

      Rona Saunders

      Jun 8, 2018

    • Carmen Bish and Baby

      Carmen Bish and Baby

      Jun 1, 2018

      You can do it girl! 💪🏼

    • Daniel Worthington

      Daniel Worthington

      Jun 1, 2018

      Hey Carli, I think you’re an incredibly brave woman and although I don’t know you well, I sincerely hope you reach your target. If you find yourself in LA, let me know and I’ll buy you a drink to 🎉

    • claire lambert

      claire lambert

      May 31, 2018

      Love you Copper! 💖💫🌈🌟✨🌺🍉❤️


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    About Crowdfunding
    About the fundraiser
    Carli Jazmine Cooper

    Carli Jazmine Cooper

    Tunbridge Wells, UK

    I’ve been writing songs & poetry long as I can remember - music is such a huge part of my life- I did set up a local charity foundation in memory of the love of my life who I lost 10yrs ago this October. Because of a promise I made 2 him I sang in public the 1st time in my life🎶

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