I've raised £5000 to Congenital Myotonic Dystrophy Ride of Hope, As a team we raise awareness and funds for PAKs for children with this life limiting condition

Organised by Carol Tattersall - Congenital Myotonic Dystrophy - Ride of Hope
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YORK ·Disability support

Story

Josh was born with congenital myotonic dystrophy. It is a neurodegenerative condition with no treatment and no cure.

The congenital myotonic dystrophy ride of hope was born out of a need to raise awareness of this condition. It is a motorcycle ride that gets bigger year on year, spreading awareness as we ride from lands end to loch ness. Subsequently, we created our charity, Positive Aid for Kids.

We supply funds or equipment for families of children living with congenital myotonic dystrophy. Every penny raised goes to this cause

About fundraiser

Carol Tattersall - Congenital Myotonic Dystrophy - Ride of Hope
Organiser

Donation summary

Total
£2,960.48