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£450raised of £1,500 target by 21 supporters

Weʼre raising £1,500 to help support 3 year old Carter and his family during his 3rd open heart surgery

Higham Ferrers, UK
12 days to go

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Story

This is 3 year old Carter-Lewis’s story.

On the 31st of August 2017 Carter from Northamptonshire, went for a check up in Bedford hospital. This was after 2 year of his mother fighting with Kettering hospital and doctors because she knew there was something wrong with her child. They finally got an appointment to see a cardiologist and paediatrician to find out that their world would come crashing down. They discovered that Carter was in major heart failure and quickly had a cardiologist from Great Ormond Street Hospital to come and give a second opinion. He was diagnosed with a rare congenital heart disease called Shones Complex disease.

His parents were told that they may not be able to do anything other than send him home and to make him comfortable as his heart was shutting down. The whole left side had deflated the only thing keeping him alive was his lungs as they had not started to shut down but once they started to deteriorate there was nothing that could be done.

The specialist cardiologist went at it all night to find a team that would at least try to give Carter a chance at longer life, he finally succeeded and Carter was blue lighted from Bedford Hospital to Great Ormond Street Hospital in London. After a week of scans, tests and planning they were ready for a nearly 7 hour open heart surgery on a small boy, they put a plastic piece into his aorta to try to widen the pin like sized whole and help with some of the other problems he was experiencing. This surgery was a new project that had not been done before and they did all they could with the time they had.

A week later Carter was back home on the road to recovery with his family. They were told he would need time to grow and put weight on and to get stronger as it was such a high risk putting him under when he was so under weight. The family thought they had a few years but not even 6 months later, he was back in again receiving his second lot of open heart surgery. This time he contracted an infection he struggled fighting but he made it through, to then be told the surgery was a fail. Another surgery would be inevitable and was planned for the beginning of 2019.

Whilst recovering Carter showed signs of bad anxiety and ptsd from the surgery which may get worse after more surgery. Carter is 1 of 5 children and this has taken a massive toll on the family. Both mother and step-dad taking time from there full times jobs, a lot of which has been unpaid.

Carter is not growing and developing as he should as his heart is not working properly. The brave little boy is booked for his third open heart surgery on 8th November 2018. He will have weekly visits leading up to this date at Great Ormand Street Hospital where Carter will undergo surgery to replace his mitral valve and try again to relieve some of the obstruction of his left ventricle.

Every time Carter under goes these surgery’s he is very high risk and there is no guarantees of the outcome after.

I’m a friend of the family and the reason I am writing this is because the family will have to take a lot of time off work, there will be a lot of travelling and (if they can’t stay on site) extra accommodation, which will have a massive financial impact. This amazing family is proud, head strong and resilient but realistically they need help to support them through this. If this can help lessen the load with the already massive stress then any kindness would be gratefully recieved towards the cost of hospital visits and additional costs.

Thanks for taking the time to read x

Thankyou for taking the time to read x

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Updates

9

  • georgina sheppard3 months ago
    georgina sheppard

    georgina sheppard

    3 months ago

    Carter is definitely not out of the danger zone yet and will the very long road ahead him and his family need as much support as possible, Thankyou so much to people that have donated, the people that have shared and to anyone that has read this story. We honestly could not do this without you all, I will try to update as and when is possible and appropriate. If you share please post with #cartersfighters to spread the word xxx

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  • georgina sheppard3 months ago
    georgina sheppard

    georgina sheppard

    3 months ago

    An update from Carter-Lewis’s family: On Thursday the 8th November Carter received his third open heart surgery. He made a quick recovery with the support of his mummy, daddy, both step parents and 4 siblings. He was recovering really well until Saturday when he took a turn for the worst. He went down hill rapidly and he was rushed back to theatre to have his chest RE-OPENED for more surgery. Carter has a very long recovery yet, there’s been quite a few complications and Carter is currently on a ventilator. xxxxx

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  • georgina sheppard3 months ago
    georgina sheppard

    georgina sheppard

    3 months ago

    Today was the day brave little Carter under went his open heart surgery. It was a very long day for him and his family, we wish him the best of recovery’s and send you all the love in the world. There journey is not over yet and support is needed now more than ever. Please take a moment to share his story far and wide #cartersfighter. Thankyou so much for opening your hearts and taking the time to read x

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5 months ago

georgina sheppard started crowdfunding

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Page last updated on: 11/14/2018 22.33

Supporters

21

  • Kerry Baynes

    Kerry Baynes

    Nov 14, 2018

    £12.00

  • Karen Hardwick

    Karen Hardwick

    Nov 14, 2018

    Wishing carter a speedy recovery.

    £20.00

  • Anonymous

    Anonymous

    Nov 11, 2018

    £3.00

  • Lorna James

    Lorna James

    Nov 6, 2018

    £10.00

  • NJIDEKA EMILIA OGBUANUBE

    NJIDEKA EMILIA OGBUANUBE

    Nov 3, 2018

    Always in my prayers carter, wishing you Gods protection and testimonies as you prepare for your next surgery xx

    £20.00

  • Anonymous

    Anonymous

    Nov 3, 2018

    Sorry its not much wish i could do more xx hope op is a good one this time xxx wishing an excellent recovery xx

    £15.00

  • Susannah Austin

    Susannah Austin

    Nov 2, 2018

    All of the best wishes, Sheppard Family. Xxx

    £10.00

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About the fundraiser
georgina sheppard

georgina sheppard

Higham Ferrers, UK

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