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LOGAN GOSTLING

LOGAN GOSTLING is crowdfunding

LOGAN GOSTLING
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Weʼre raising £20,000 to continue Logans Physiotherapy rehabilition

MATTISHALL DEREHAM NORFOLK

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Story

At the 12 week scan, it was found that our baby had a condition called Gastroschisis. However, though this was a very uncommon condition we decided to continue with the pregnancy as we had been advised that after surgery when born, the baby would have a normal life.

Logan was then born at 30 weeks (13.03.17) by emergency caesarean section, he weighed 2lb 8, with the condition.

At only two hours old Logan had a major operation to put his large intestine back inside his tiny body. However, he was found to have a colonic astresia, requiring another operation to remove 4cm of his large intestine. Then, at 6 weeks old, he had a blockage in the intestine and required yet another operation. He then battled on in NICU at the Norfolk and Norwich Hospital with conjugated hyperbilirubinemia.

He suffered with milk intolerance and could not accept milk of any kind. His TPN long line that was feeding him with the nutrients that he needed then became infected with two different bacteria's which lead to sepsis.

Logan's life was now in danger! But, being Logan, he battled on after having the long line removed and later re-positioned.

He battled through many other minor set backs, he finally came home on 24.07.2017, returning to the hospital on a weekly basis.

Logan then continued to progress at home, however he was not reaching the "normal" childhood milestones.

On 22.10.2018 Logan was seen by the physiotherapist team at home, they assessed his condition. We then attended an appointment at the hospital with the "premie" consultant where it was confirmed that Logan had a type of Cerebral Palsy(CP).

We then attended CP clinic on 28.02.2019 where they carried out further testing where his Gross Motor Function Classification Score was confirmed to be at level 4, on a scale of 1-5, with 5 being the most severe.

Meaning that Logan was / is reliant on others and a wheel chair for mobility.

Medication was then prescribed to try and relieve some of his discomfort.

In May 2019 he was sent for a MRI scan which revealed that he had Bilateral PVL (Periventricular Leukomalacia), which is the softening of white brain tissue near the ventricles (fluid chambers to the brain). This caused Logan to be diagnosed with Bilatral C.P. effecting all four of his limbs. Resulting in pain and discomfort daily with him unable to sit, stand or walk unaided.

Logan has had intensive physio and hydro therapy since 2019.

He has been supplied with a support walker and wheelchair to encourage and help him with is mobility. He has also received special chairs and tables supplied to the Nursery he attends and also in his home to make his life easier.

In December 2020 he was finally able to go back into the hospital (due to Covid 19) and start the next stage of his treatment and have Botulinau Toxin A injections into his Bilatral Adducttor Longus and Gracilis (muscles), this gave him more movement in his upper legs reducing the spasticity helping with the scissor action in his legs.

Due to Logan's determination to walk and the hard work and encouragement everyone involved has given to him, Logan has now been put forward for an SDR operation - Selective Dorsal Rhizotomy at Alder Hey Children's Hospital in Liverpool.

This operation will reduce the discomfort Logan suffers everyday and gain more independence, with an insight into him walking unaided in the future.

So after we were given the wonderful news that specialists feel that Logan would majorly benefit from SDR, we were then told that unfortunately the NHS would not be able to fund the expense of the operation nor the intense physio, that will be required post operation.

So you great people helped to send Logan to Liverpool on the 18th February 2020 for his operation. The surgery went very well and Logan is now back home and is now starting on the long road of intense physio.

This is the bit where we ask you to continue to help us give Logan his dream to be pain free and drug free, to give him the greatest opportunity to walk, run and all the other things that all boys dream of doing.

We will be doing MANY fund raising activities and hope that you can all come and join us, but if you feel you would just like to donate anonymously or would like to help by organising an event then please feel to contact us.

Logan Thanks You all for taking the time to read his story so far and hopes that he can continue his journey with your love and support from near and afar.

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Updates

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  • LOGAN GOSTLING5 months ago
    LOGAN GOSTLING

    LOGAN GOSTLING

    5 months ago

    If you have read the updated story you will be aware that Logan has been to Alder Hay Childrens Hospital & had his SDR operation on the 18th Feb 2022. This went very well, he is now back home, his intense physio started. We need to continue to fund this physio with the operation costing £16,300.00 on going physio costing approx £ 500.00 per month pennies will soon disappear. We have a few things coming up to raise funds,so keep an eye out on face book etc. We are looking forward to new challenges to raise funds to make his dream come true.

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  • LOGAN GOSTLING5 months ago
    LOGAN GOSTLING

    LOGAN GOSTLING

    5 months ago

    Hi everyone As you can see we have had to set up a new page for Logan. Firstly we apologies for this but would like to let you know that the previous page showed that you jointly raise a wonderful £ 21,449.84 + the fundraising that went directly into the fund raising bank account we had a grand total of £34,721.05, we are also aware of another £ 11,500.00 that has been raised and pledged to Logan but not yet hit the bank account, this is just amazing and Logan and his team cannot thank you enough. Please see the next post!!

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5 months ago

LOGAN GOSTLING started crowdfunding

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Page last updated on: 3/16/2022 22.08

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    About the fundraiser
    LOGAN GOSTLING

    LOGAN GOSTLING

    MATTISHALL DEREHAM NORFOLK

    Logan is a little boy with a Big Dream

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