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Stacey McPherson raised £2,375 from 101 supporters


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Closed 30/06/2019

raised of £3,500 target by 101 supporters

    Weʼve raised £2,375 to Help Calum get to meet his rare CHAMP family at the first ever CHAMP conference in Florida.

    Funded on Sunday, 30th June 2019

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

    The page owner is responsible for the distribution of funds raised.


    I’ve chosen to support the CHAMP1 Research Foundation because my son is 1 of only 51 in the world with this rare genetic condition. He received the diagnosis in 2016 after 7 years of being undiagnosed. I created a Facebook Group and we now have 45 of the families connected worldwide through the group. I have just recently joined the Board on the newly established CHAMP1 Research Foundation as the Community Support Chair which was set up by one of our American CHAMP families.

    There are two reasons for my fundraising. The first being the American CHAMP families are meeting at the inaugural CHAMP1 Conference in June 2019. I am hoping to be able to take my son Calum to meet the other families and for us to be able to spend time with them. We also have medical professionals attending to collaborate with the champ1 community.

    Secondly, the CHAMP1 Research Foundation has formed a Scientific Advisory Board. There are potential researchers available if our Foundation has funding to cover their research costs. This research would help to fully understand the function of the CHAMP1 gene in order to develop effective treatments and a potential cure for CHAMP1 disorders.




    Stacey McPherson

    Updates appear here

      1 year ago

      Stacey McPherson started crowdfunding

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      Page last updated on: 4/20/2019 09.08



      • Anonymous


        Apr 20, 2019

        Well done Stacey-it'll be an amazing experience


      • John Neilson

        John Neilson

        Mar 26, 2019

        Ryan Lockwood Salamis Ninian South Platform


      • Anonymous


        Mar 23, 2019

        Alex Mclaughlan Salamis Ninian South Platforn.


      • Amanda Cameron

        Amanda Cameron

        Mar 23, 2019


      • Jennifer Duthie

        Jennifer Duthie

        Mar 20, 2019

        Keep going Stacey x You're doing an amazing job xxxx😘


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        Mar 13, 2019

        Craig Hollinsworth Bilfinger .Ninian South Platform


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        Mar 13, 2019

        Andy Hutchinson Bilfinger .Ninian South Platform


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      About Crowdfunding
      About the fundraiser
      Stacey McPherson

      Stacey McPherson

      Stirling If you'd like to know more about our children and their rare genetic condition.

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