Your friends are fundraising. Don't miss out, opt in.

0

%

£1,915raised of £3,500 target by 78 supporters

Weʼre raising £3,500 to Help Calum get to meet his rare CHAMP family at the first ever CHAMP conference in Florida.

What is crowdfunding?

Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

The page owner is responsible for the distribution of funds raised.

Story

I’ve chosen to support the CHAMP1 Research Foundation because my son is 1 of only 51 in the world with this rare genetic condition. He received the diagnosis in 2016 after 7 years of being undiagnosed. I created a Facebook Group and we now have 45 of the families connected worldwide through the group. I have just recently joined the Board on the newly established CHAMP1 Research Foundation as the Community Support Chair which was set up by one of our American CHAMP families.

There are two reasons for my fundraising. The first being the American CHAMP families are meeting at the inaugural CHAMP1 Conference in June 2019. I am hoping to be able to take my son Calum to meet the other families and for us to be able to spend time with them. We also have medical professionals attending to collaborate with the champ1 community.

Secondly, the CHAMP1 Research Foundation has formed a Scientific Advisory Board. There are potential researchers available if our Foundation has funding to cover their research costs. This research would help to fully understand the function of the CHAMP1 gene in order to develop effective treatments and a potential cure for CHAMP1 disorders.

#YearofOurChamps
#CHAMP1ON
#CHAMP1Research

Share this story

Updates

9

  • Stacey McPherson4 days ago
    Stacey McPherson

    Stacey McPherson

    4 days ago
    Update from the Page owner

    Half way there!! Thank you so much for your support 💜💜

    Share this update to help us raise more

  • Stacey McPherson5 days ago
    Stacey McPherson

    Stacey McPherson

    5 days ago
    Update from the Page owner

    Share this update to help us raise more

  • Stacey McPherson9 days ago
    Stacey McPherson

    Stacey McPherson

    9 days ago

    We've raised almost £1200 in under one week. From the bottom of our hearts THANK YOU 💜

    Share this update to help us raise more

1 month ago

Stacey McPherson started crowdfunding

Leave a message of support

Page last updated on: 2/17/2019 21.11

Supporters

78

  • Lauren-Ashley McGrouther

    Lauren-Ashley McGrouther

    Feb 17, 2019

    £10.00

  • Kirsty Wood

    Kirsty Wood

    Feb 17, 2019

    From Andrew Burnett

    £10.00

  • Anonymous

    Anonymous

    Feb 17, 2019

    Hope you get the funds you need xx

  • John Neilson

    John Neilson

    Feb 16, 2019

    David PiP Mains, Ninian South Platform .Best Wishes

    £20.00

  • Helen Ballantyne

    Helen Ballantyne

    Feb 16, 2019

    Good luck Stacey.

    £30.00

  • Emma Fernandes

    Emma Fernandes

    Feb 15, 2019

    Awe - best of luck, I really hope the conference gives you all the valuable information & contacts you need. X🥰

    £10.00

  • Valerie Muir

    Valerie Muir

    Feb 15, 2019

    Good luck Stacey x

    £10.00

Stacey McPherson

Become a supporter

Help Stacey McPherson raise more

About the fundraiser
Stacey McPherson

Stacey McPherson

Stirling

www.champ1research.org www.champ1gene.com If you'd like to know more about our children and their rare genetic condition.

Report this Page
Donate