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Stacey McPherson raised £2,375 from 101 supporters
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Closed 30/06/2019
Weʼve raised £2,375 to Help Calum get to meet his rare CHAMP family at the first ever CHAMP conference in Florida.
- Funded on Sunday, 30th June 2019
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Story
I’ve chosen to support the CHAMP1 Research Foundation because my son is 1 of only 51 in the world with this rare genetic condition. He received the diagnosis in 2016 after 7 years of being undiagnosed. I created a Facebook Group and we now have 45 of the families connected worldwide through the group. I have just recently joined the Board on the newly established CHAMP1 Research Foundation as the Community Support Chair which was set up by one of our American CHAMP families.
There are two reasons for my fundraising. The first being the American CHAMP families are meeting at the inaugural CHAMP1 Conference in June 2019. I am hoping to be able to take my son Calum to meet the other families and for us to be able to spend time with them. We also have medical professionals attending to collaborate with the champ1 community.
Secondly, the CHAMP1 Research Foundation has formed a Scientific Advisory Board. There are potential researchers available if our Foundation has funding to cover their research costs. This research would help to fully understand the function of the CHAMP1 gene in order to develop effective treatments and a potential cure for CHAMP1 disorders.
#YearofOurChamps
#CHAMP1ON
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Updates
11
5 years ago
Stacey McPherson
5 years agoShare this update to help us raise more
5 years ago
Stacey McPherson
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5 years ago
Stacey McPherson
5 years agoHalf way there!! Thank you so much for your support 💜💜
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Stacey McPherson started crowdfunding
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Supporters
101
Anonymous
Apr 20, 2019
Well done Stacey-it'll be an amazing experience
£30.00
John Neilson
Mar 26, 2019
Ryan Lockwood Salamis Ninian South Platform
£20.00
Anonymous
Mar 23, 2019
Alex Mclaughlan Salamis Ninian South Platforn.
£20.00
Amanda Cameron
Mar 23, 2019
£20.00
Jennifer Duthie
Mar 20, 2019
Keep going Stacey x You're doing an amazing job xxxx😘
£20.00
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Mar 13, 2019
Craig Hollinsworth Bilfinger .Ninian South Platform
£20.00
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Mar 13, 2019
Andy Hutchinson Bilfinger .Ninian South Platform
£20.00
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Stacey McPherson
www.champ1research.org www.champ1gene.com If you'd like to know more about our children and their rare genetic condition.