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Stacey McPherson raised £2,375 from 101 supporters

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Closed 30/06/2019

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£2,375raised of £3,500 target by 101 supporters

    Weʼve raised £2,375 to Help Calum get to meet his rare CHAMP family at the first ever CHAMP conference in Florida.

    Stirling
    Funded on Sunday, 30th June 2019

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

    The page owner is responsible for the distribution of funds raised.

    Story

    I’ve chosen to support the CHAMP1 Research Foundation because my son is 1 of only 51 in the world with this rare genetic condition. He received the diagnosis in 2016 after 7 years of being undiagnosed. I created a Facebook Group and we now have 45 of the families connected worldwide through the group. I have just recently joined the Board on the newly established CHAMP1 Research Foundation as the Community Support Chair which was set up by one of our American CHAMP families.

    There are two reasons for my fundraising. The first being the American CHAMP families are meeting at the inaugural CHAMP1 Conference in June 2019. I am hoping to be able to take my son Calum to meet the other families and for us to be able to spend time with them. We also have medical professionals attending to collaborate with the champ1 community.

    Secondly, the CHAMP1 Research Foundation has formed a Scientific Advisory Board. There are potential researchers available if our Foundation has funding to cover their research costs. This research would help to fully understand the function of the CHAMP1 gene in order to develop effective treatments and a potential cure for CHAMP1 disorders.

    #YearofOurChamps
    #CHAMP1ON
    #CHAMP1Research

    Updates

    11

    • Stacey McPherson4 months ago
      Stacey McPherson

      Stacey McPherson

      4 months ago
      Update from the Page owner

      Share this update to help us raise more

    • Stacey McPherson5 months ago
      Stacey McPherson

      Stacey McPherson

      5 months ago
      Update from the Page owner

      Share this update to help us raise more

    • Stacey McPherson5 months ago
      Stacey McPherson

      Stacey McPherson

      5 months ago
      Update from the Page owner

      Half way there!! Thank you so much for your support 💜💜

      Share this update to help us raise more

    6 months ago

    Stacey McPherson started crowdfunding

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    Page last updated on: 4/20/2019 09.08

    Supporters

    101

    • Anonymous

      Anonymous

      Apr 20, 2019

      Well done Stacey-it'll be an amazing experience

      £30.00

    • John Neilson

      John Neilson

      Mar 26, 2019

      Ryan Lockwood Salamis Ninian South Platform

      £20.00

    • Anonymous

      Anonymous

      Mar 23, 2019

      Alex Mclaughlan Salamis Ninian South Platforn.

      £20.00

    • Amanda Cameron

      Amanda Cameron

      Mar 23, 2019

      £20.00

    • Jennifer Duthie

      Jennifer Duthie

      Mar 20, 2019

      Keep going Stacey x You're doing an amazing job xxxx😘

      £20.00

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      Mar 13, 2019

      Craig Hollinsworth Bilfinger .Ninian South Platform

      £20.00

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      Mar 13, 2019

      Andy Hutchinson Bilfinger .Ninian South Platform

      £20.00

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    About Crowdfunding
    About the fundraiser
    Stacey McPherson

    Stacey McPherson

    Stirling

    www.champ1research.org www.champ1gene.com If you'd like to know more about our children and their rare genetic condition.

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