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Weʼre raising £3,500 to Help Calum get to meet his rare CHAMP family at the first ever CHAMP conference in Florida.
- Stirling
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Story
I’ve chosen to support the CHAMP1 Research Foundation because my son is 1 of only 51 in the world with this rare genetic condition. He received the diagnosis in 2016 after 7 years of being undiagnosed. I created a Facebook Group and we now have 45 of the families connected worldwide through the group. I have just recently joined the Board on the newly established CHAMP1 Research Foundation as the Community Support Chair which was set up by one of our American CHAMP families.
There are two reasons for my fundraising. The first being the American CHAMP families are meeting at the inaugural CHAMP1 Conference in June 2019. I am hoping to be able to take my son Calum to meet the other families and for us to be able to spend time with them. We also have medical professionals attending to collaborate with the champ1 community.
Secondly, the CHAMP1 Research Foundation has formed a Scientific Advisory Board. There are potential researchers available if our Foundation has funding to cover their research costs. This research would help to fully understand the function of the CHAMP1 gene in order to develop effective treatments and a potential cure for CHAMP1 disorders.
#YearofOurChamps
#CHAMP1ON
#CHAMP1Research
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Updates
9
4 days ago
Stacey McPherson
4 days agoHalf way there!! Thank you so much for your support 💜💜
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5 days ago
Stacey McPherson
5 days agoShare this update to help us raise more
9 days ago
Stacey McPherson
9 days agoWe've raised almost £1200 in under one week. From the bottom of our hearts THANK YOU 💜
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Stacey McPherson started crowdfunding
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Supporters
78
Lauren-Ashley McGrouther
Feb 17, 2019
£10.00
Kirsty Wood
Feb 17, 2019
From Andrew Burnett
£10.00
Anonymous
Feb 17, 2019
Hope you get the funds you need xx
John Neilson
Feb 16, 2019
David PiP Mains, Ninian South Platform .Best Wishes
£20.00
Helen Ballantyne
Feb 16, 2019
Good luck Stacey.
£30.00
Emma Fernandes
Feb 15, 2019
Awe - best of luck, I really hope the conference gives you all the valuable information & contacts you need. X🥰
£10.00
Valerie Muir
Feb 15, 2019
Good luck Stacey x
£10.00

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About the fundraiser

Stacey McPherson
Stirling
www.champ1research.org www.champ1gene.com If you'd like to know more about our children and their rare genetic condition.