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Amanda Crawford

Amanda Crawford is crowdfunding

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£385raised of £1,000 target by 21 supporters

Weʼre raising £1,000 to fund travel costs to London for medical review and further treatment, which is not available in Scotland.

Renfrewshire

What is crowdfunding?

Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

The page owner is responsible for the distribution of funds raised.

Story

Chance, 3, has an extremely rare genetic condition called Glycogen Storage Disease (GSD) type 9a.

This means that Chance cannot breakdown or release glycogen from his liver where it is naturally stored. He primarily suffers from enlarged liver (when undertreated can lead to scarring and cirrhosis), chronic hypoglycaemia, chronic ketosis and ketoacidosis, lactic acid of the blood, slow growth and vitamin deficiency.

Secondary symptoms are vomiting, diarrhoea, lethargy, pale skin, low energy, sore tummies which all cause distress.

Scotland does not have the knowledge or the resources to treat and care for our son and his condition.

Chance is the only person in Scotland with this sub-type – there are around 45 people in the country with GSD and around 30 of those are made up from type 5 aka ‘McArdles Disease’.

After a six-month battle our son was seen for a second opinion in Evelina Children’s Hospital, London in May 2019 and Dr Mundy and the metabolic team there have started my son on a strict feeding plan.

When treated, the results are fast acting and we are pleased to say that we have already seen an improvement in our beautiful son in a matter of weeks.

We are hoping to raise money to fund the travel costs to and from London for Chance’s review on July 29, 2019, as NHS Scotland’s funds and support are limited.

Our event will be held in Canal Station bar on Sunday June 16, 2019.

I have made this page as I am aware many people would like to donate, but cannot make the event.

Thank you kindly for taking the time to read this and support us.

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Amanda Crawford

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    18 days ago

    Amanda Crawford started crowdfunding

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    Page last updated on: 6/17/2019 08.03

    Supporters

    21

    • Emma

      Emma

      Jun 17, 2019

      Hope yesterday went well, I was there in spirit ❤️

    • John Kerr

      John Kerr

      Jun 14, 2019

      Hope you achieve the amount you are looking for because children are worth anything in the world, good luck.

      £20.00

    • Lynne Crawford

      Lynne Crawford

      Jun 14, 2019

      £10.00

    • Anonymous

      Anonymous

      Jun 13, 2019

      Best Wishes

      £20.00

    • Ella Hodgson

      Ella Hodgson

      Jun 13, 2019

      £20.00

    • Carol Earp

      Carol Earp

      Jun 13, 2019

      Best wishes

      £20.00

    • Penny & Aaron

      Penny & Aaron

      Jun 13, 2019

      Thinking of you all at this stressful time and hope this goes a small way to help alleviate some of the stress you are all under. Keep fighting Chance. Lots of love Penny and Aaron xxxx

      £25.00

    Amanda Crawford

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    About the fundraiser
    Amanda Crawford

    Amanda Crawford

    Renfrewshire

    I'm Chance's mum and have been fighting the battle of my life.

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