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£4,381raised of £60,000 target by 103 supporters

Weʼre raising £60,000 to fund lifesaving neurosurgery in Barcelona for my daughter Charlie.

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Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

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Story

I am fundraising for lifesaving neurosurgery in Barcelona for my daughter Charlie.

Charlie has been severely ill for 4 years. After many years fighting for a correct diagnosis we now know that she is suffering from cervical medullary syndrome (brain stem compression) a rare, life threatening and extremely debilitating complication of Hypermobile Ehlers-Danlos Syndrome.

If left untreated the outlook is very bleak and Charlie will continue to deteriorate. The UK does not have up to date treatment for this condition, as a result patients have to seek out help from Neurosurgeons in either Barcelona or America.

We have had confirmation from Dr Gilete that Charlie's brain stem compression is advanced and she needs to have surgical intervention. We are taking Charlie to Barcelona on January 21st 2019 for more tests and for the surgeons to make a surgical plan. After this trip we will know how much the surgery and expenses are going to cost and how long we will have to raise it. We know that the minimum is likely £60,000.

I will be eternally grateful for any contribution made to help me save my daughters life.

All my love,

Lisa Headland.

To learn more about the conditions and the surgery, go to: https://drgilete.com/cci-eds/

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Updates

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  • Lisa Headland6 days ago
    Lisa Headland

    Lisa Headland

    6 days ago

    4 days until our first trip to Barcelona. Itinerary: SUNDAY - traveling to Barcelona. MONDAY - Charlie is having an MRI of full spine with contrast to check for intracranial pressure from vein compression. TUESDAY - Having aCT scan of the cervical spine, which will build a 3D image of the cervical spine to help the surgical plan. Then having the consultation with Dr Gilete (Neurosurgeon). WEDNESDAY - Rest day. THURSDAY - Traveling home. #Chance4Charlie

    Update from the Page owner

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  • Lisa Headland18 days ago
    Lisa Headland

    Lisa Headland

    18 days ago
    Update from the Page owner

    Thank you to everyone who has donated or shared this fundraiser or given us words of support so far. Thank you does not seem like a strong enough phrase to express how truly grateful my family and I are to everyone who is rooting for us and Charlie as we face a long road ahead. The generosity we have seen is truly outstanding. Everything is in place for our first trip to Barcelona, it will be tough as Charlie is very poorly and struggles to be upright. But we will keep everyone updated on our progress. All our love, Lisa and family xxxxx

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20 days ago

Lisa Headland started crowdfunding

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Page last updated on: 1/22/2019 03.16

Supporters

103

  • Mandi N

    Mandi N

    Jan 22, 2019

    Hope the treatment goes well 🙏🏼

    £10.00

  • Ian West

    Ian West

    Jan 21, 2019

    Wishing you all the best x

    £30.00

  • Anonymous

    Anonymous

    Jan 21, 2019

    Love & Light ❤️

    £30.00

  • Anonymous

    Anonymous

    Jan 21, 2019

  • Claire pearce

    Claire pearce

    Jan 21, 2019

    Sending you lots of love Charlie!!

    £40.00

  • Anonymous

    Anonymous

    Jan 21, 2019

    £20.00

  • Cressy Liepman

    Cressy Liepman

    Jan 20, 2019

    £100.00

Lisa Headland

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Lisa Headland

Lisa Headland

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