I am fundraising for lifesaving neurosurgery in Barcelona for my daughter Charlie.

Charlie has been severely ill for 4 years. After many years fighting for a correct diagnosis we now know that she is suffering from cervical medullary syndrome (brain stem compression) a rare, life threatening and extremely debilitating complication of Hypermobile Ehlers-Danlos Syndrome.

If left untreated the outlook is very bleak and Charlie will continue to deteriorate. The UK does not have up to date treatment for this condition, as a result patients have to seek out help from Neurosurgeons in either Barcelona or America.

We have had confirmation from Dr Gilete that Charlie's brain stem compression is advanced and she needs to have surgical intervention. We are taking Charlie to Barcelona on January 21st 2019 for more tests and for the surgeons to make a surgical plan. After this trip we will know how much the surgery and expenses are going to cost and how long we will have to raise it. We know that the minimum is likely £60,000.

I will be eternally grateful for any contribution made to help me save my daughters life.

All my love,

Lisa Headland.

To learn more about the conditions and the surgery, go to: https://drgilete.com/cci-eds/