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Lisa Headland raised £26,828.83 from 421 supporters


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Closed 27/09/2019

raised of £60,000 target by 421 supporters

    Weʼve raised £26,828 to Continue to support Charlie's post surgery recovery and ongoing healthcare. Learn more at:

    Funded on Friday, 27th September 2019

    Don't have time to donate right now?


    (Read the update below or watch the video in the comments)

    I am fundraising for lifesaving neurosurgery in Barcelona for my daughter Charlie.

    Charlie has been severely ill for 4 years. After many years fighting for a correct diagnosis we now know that she is suffering from cervical medullary syndrome (brain stem compression) a rare, life threatening and extremely debilitating complication of Hypermobile Ehlers-Danlos Syndrome.

    If left untreated the outlook is very bleak and Charlie will continue to deteriorate. The UK does not have up to date treatment for this condition, as a result patients have to seek out help from Neurosurgeons in either Barcelona or America.

    We have had confirmation from Dr Gilete that Charlie's brain stem compression is advanced and she needs to have surgical intervention. We are taking Charlie to Barcelona on January 21st 2019 for more tests and for the surgeons to make a surgical plan. After this trip we will know how much the surgery and expenses are going to cost and how long we will have to raise it. We know that the minimum is likely £60,000.

    I will be eternally grateful for any contribution made to help me save my daughters life.

    All my love,

    Lisa Headland.

    Some donations are going directly into the Chance4Charlie bank account so for a more up-to-date fundraising total visit the website:

    To learn more about the conditions and the surgery, go to:


    We have raised enough now for the initial surgery, flights and accomodation. Thank you, you are all amazing and we could not have done it withou you. We are asking that the fundraising doesn't stop now though, as Charlie has been told she may need a second surgery with the same surgeons a few weeks after her initial surgery. Her jugular veins are fully collasped and not draining blood from her brain causing severe intracranial pressure, this might improve after the intial surgery, but if it doesn't after a few weeks it will need immediate surgical intervention. We have asked for a quote for this and are still waiting, unfortunately it is not covered by complications as its a pre-existing condition that was discovered in January.

    If she does not need this surgery and we go above our target she will use some of the money for recovery costs (physio, follow up appointments with the surgeons) And if we raise more beyond that Charlie will either donate the money directly to other people in her situation in the UK, as she is in contact with many through an online support group or if she is recovering well Charlie plans on starting a charity to help people in the UK suffering with EDS and potential Cervical Medullary Syndrome to firstly access a diagnosis, which is currently only available privately in the UK and then help them fundraise, as being a registered charity opens the door to large donations from companies, something Chance4Charlie has been unable to access, but if we registered as a charity we could access this for othe people.



    • Lisa Headland5 years ago
      Lisa Headland

      Lisa Headland

      5 years ago

      I am closing this page tomorrow. I just wanted to thank everyone who helped me fund my surgery and the first part of my recovery. My recovery is going well. I am a chronically ill person but my life is no longer in danger and I can plan for a future once again. Thank you so much for all the support, my eternal gratitude. All my love, Charlie xxxx

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    • Lisa Headland5 years ago
      Lisa Headland

      Lisa Headland

      5 years ago

      ***BIG NEWS*** current fundraising total and surgery date! Thank you so much to everyone for your continued support, this is incredible.

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    • Lisa Headland5 years ago
      Lisa Headland

      Lisa Headland

      5 years ago

      The current total raised is amazingly £35,042.42. Thank you so much to everyone who has been donating, fundraising, sharing the story. We are eternally grateful and overwhelmed by the generosity and support shown to us. We are hoping to book a surgery date soon, hopefully no later than May xxx

      Update from the Page owner

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    6 years ago

    Lisa Headland started crowdfunding

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    Page last updated on: 9/26/2019 21.22



    • Anonymous


      Jul 29, 2019

      Wishing you all the luck in the world Charlie. Tim and Clare x


    • Anonymous


      Jul 15, 2019


    • Catherine Lane

      Catherine Lane

      May 14, 2019

      I didn’t make the cake sale at GC parkrun , but I heard it was a huge success. Runners love cake Good luck with your fundraising x


    • Natalie Bayes

      Natalie Bayes

      May 8, 2019


    • Tom and Ant

      Tom and Ant

      May 7, 2019


    • Anonymous


      Apr 27, 2019


    • Mike Errington

      Mike Errington

      Apr 22, 2019

      My sponsor contribution from Swimathon 27th Mar, also a few gave straight to website in total was £425 , Good luck Charlie we are all thinking of you sweetie lots of love Mike, Dee and family xx


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    Lisa Headland

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