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Lisa Headland raised £14,464.2 from 215 supporters


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Closed 28/03/2022

raised of £30,000 target by 215 supporters

    Weʼve raised £14,464 to fund neurosurgery for Charlie with a specialist neurosurgeon in Barcelona.

    Funded on Monday, 28th March 2022

    Don't have time to donate right now?


    We are raising £30,000 for neurosurgery for Charlie with a specialist neurosurgeon in Barcelona who is able to treat spine complications of Charlie's rare disease, Classical Ehlers-Danlos Syndrome.

    Charlie has Occult Tethered Cord and needs a tethered cord release surgery. This means her spinal cord is inappropriately tethered to the inside of her spinal column causing too much tension in her spine. This is causing nerve damage and putting pressure on her spinal fusion and other unstable areas of her spine.We aim to have the funds as soon as possible so that Charlie can have the surgery in February 2022.

    Two years ago, this same surgeon saved Charlie's life, when he operated on her neck and skull, giving her a spinal fusion and jugular vein decompression, the surgery went extremely well. However as Charlie's condition is complex and progressive it was likely she would need more surgical intervention after this. Her tethered cord was undetected at this time as the symptoms of her neck instability were the most prominent. The tethered cord is now pulling down on her fusion and if left untreated will cause further instability, more nerve damage and put Charlie's life as she knows it in danger.

    Please donate and share this page. We are so grateful for any support.

    (Justgiving takes a small percentage of each donation so to avoid this you can also transfer your donation directly to my fundraising account, details of this can be found at



    • Lisa Headland2 years ago
      Lisa Headland

      Lisa Headland

      2 years ago

      Fundraising update, we have made the 30k minimum we had hoped to fundraise for my surgery! 🎉🎉🎉🎉🎉 At the same time the time limit on my justgiving page ran out, so if you still have money to donate from an event you can do so via the PayPal or the fundraising account. Details for this are on the website. Although I have enough for surgery now an extra money will go towards recovery costs, other medical costs and future visits to my neurosurgeon. Thank you so much for all your continued support. Xx

      Share this update to help us raise more

    • Lisa Headland2 years ago
      Lisa Headland

      Lisa Headland

      2 years ago

      We have made it over 28k which is amazing. We are so close to our target and I know now I will be able to have my surgery, which is so needed! Thank you so much to everyone who has helped us get here and thank you so much to everyone who continues to support this last push for surgery funds. Sending out so much love and gratitude x

      Update from the Page owner

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    • Lisa Headland2 years ago
      Lisa Headland

      Lisa Headland

      2 years ago

      Thank you so much for all your donations, as we also receive PayPal donations and bank transfers the current total is actually now £25,081.99 Only 5 grand left to fundraise! Thank you so much for everyone's continued support. I have been extremely unwell this week so more than ever I am looking forward to having this surgery and beginning to build back some of my capacity.

      Update from the Page owner

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    3 years ago

    Lisa Headland started crowdfunding

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    Page last updated on: 4/4/2022 17.40



    • Blythe


      Mar 26, 2022


    • Naomi


      Mar 25, 2022

      Next payment from the digital painting fundraiser x


    • Pippa & Liz

      Pippa & Liz

      Mar 22, 2022

      Best wishes


    • Anni & Kev xx

      Anni & Kev xx

      Mar 22, 2022


    • Elaine Bywaters

      Elaine Bywaters

      Mar 22, 2022



    • Sarah and Nathan Smith

      Sarah and Nathan Smith

      Mar 22, 2022


    • Lisa Lintott

      Lisa Lintott

      Mar 21, 2022

      Thank you


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    About the fundraiser
    Lisa Headland

    Lisa Headland


    Charlie is my daughter. She has a rare genetic connective tissue disease called Classical Ehlers-Danlos Syndrome. This condition is still poorly understood and we have to fundraise so Charlie can get treatement from specialists around the world.

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