Weʼve raised £1,265 to help Charlie
- Hythe, United Kingdom
- Funded on Thursday, 29th June 2017
Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.
The page owner is responsible for the distribution of funds raised.
Charlie was diagnosed with Duchenne Muscular Dystrophy (DMD) in 2011. It was a day that changed our lives forever.
Duchenne Muscular Dystrophy (DMD) is a progressive muscle wasting condition. DMD is always fatal.
It is the most common child hood genetic disorder. 1 in 3,500 children are effected.
At present Charlie's body is failing him, his legs are giving way, he is falling often, his body aches, he experiences extreme tiredness and has associated Autistic traits. He understands he has poorly muscles and recognizes the difference in his peers.
Duchenne will gradually paralyze Charlie's body and leave him with heart failure. We will never give up fighting for Charlie's life and happiness. This is why we set up a Chance for Charlie (c4c)
1)Find a cure through financially supporting active research
2)Provide Charlie with aids that will support his independence and make his life a little easier.
Duchenne is classed as a rare disease and trials into treatments and cures are not funded through the government. There are very promising trials currently happening. Our strength and hope comes from knowing that we are scientifically advancing and treatments are being developed with the hope a cure will soon be found. It is our aim to donate regular funds raised through Chance for Charlie to these on going researches.
There are often large shortfalls in funding for disabled and many things are not covered through the NHS. Quite often these are the things that may not be essential but would help both Charlie and his carers. An example of this could be remote controlled lighting which would enable Charlie to independently change his environment without having to rely on someone to be by his side. These things may not seem important for others but to with DMD these little things are the big things.
We are very open with how the fund is spent, for regular updates please see www.chanceforcharlie.com
Updates appear here
Claire Liggett- Charlie's mum started crowdfunding
Leave a message of support
May 24, 2017
May 14, 2017
Well done Karen, you're an amazing lady. Wishing Charlie all the best for his future x
May 11, 2017
Sending lots of love to Charlie from all at BLM. The funds for this donation were collected from staff at BLM in April's dress down collection! xx
May 8, 2017
Cash received from a friends lovely mum x
Apr 25, 2017
'Well done Karen, very worthwhile cause x
Apr 25, 2017
Cash donation from a friend x
Apr 24, 2017
Well done karen
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