I wanted to go into more detail with regards to Elsie’s treatment. Chemo would be a starting treatment and what the NHS would offer. Ideally we want to put this off for as long as we can due to the length of treatment and effects on Elsie. We would also need to go to Hillingdon Hospital for some of the chemo and we are not happy about that. We was turned away 3 times by hillingdon when Elsie was unwell and showing the symptoms which led us to where we are now. We could have caught it back in May. We have no trust in that hospital now.

So today was a hard day but we got the news we wanted. Today we met with the oncologist at John Radcliffe. Really happy, no treatment needs to start this side of Christmas. Elsie’s next scan is the 17th of January. If the tumour has grown then it’s chemotherapy for 18 months, if it hasn’t they re-scan in 3 months. We finally got Elsie’s MRI scan pictures yesterday, they have been sent to Harley street. The plan is still the same and we will continue to find the best place that might be able to remove the tumour or at least some of it. X

So we finally have Elsie’s genetic testing back from Germany and we have some good news, it’s not aggressive, this was the result we was hoping for, it gives us time to make the right decision on treatment for Elsie. We have a meeting next Tuesday to go over the results. We are still exploring private treatments, we can finally get the ball rolling now we have all the results back. We have a long road ahead but Elsie is doing great. Still no signs of the pressure in her head and she’s able to go back to Nursery a few mornings starting tomorrow.