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#ChantellesChiariJourney

Over the last 22 months my daughter Chantelle Cummings age 12,whom already suffers from complex medical conditions, including Chiari Malformation, Intercrainial Hypertension, Sixth Nerve Palsy, Syrinx on the spinal cord just to name a few, has been suffering from an unknown cause at this time of total paralysis accompanied by extreme pain.(muscle spasm) this can last between 4-45 hours.Prior to these attacks Chantelle can just drop to the floor without warning.

This has happened 389 times within 22 months.

This can happen at any time with no prior warning making maintaining a normal life extremely difficult.

We have seen this progress from pins and needles to this extreme in a short time, she has had many symptoms that have developed since her brain surgery and without private medical intervention(Upright MRI Scan in Birmingham which the Sick kids are unwilling to send her or until she has progressed which by this time may be irreversible to enable swift answers and hopefully a solution. This will enable us to move forward privately. If the upright Scanner does show a problem with the syrnix(CSF Flow).

Please if you can help in any way with fundraising get in touch.

Keep looking at the page for upcoming fundraising events that will be ongoing. We have our first fundraiser event with Simon Says Dance confirmed and details will follow on her Journey facebook page.

Thank you from the bottom of my heart to everyone who helps make this happen along the way.

Love Charlene Cummings x