Weʼve raised £264 to Charity Band Day 2017 for LEWIS HERBERT
- Northampton, United Kingdom
- Funded on Saturday, 30th September 2017
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Its been a while but I have decided to hold another CHARITY BAND DAY, on SUNDAY 27TH AUGUST 2017 @ THE OLD WHITE HART, COTTON END, NORTHAMPTON
Live music all day BY SUPERB LOCAL MUSICIANS at THE OLD WHITE HART and headlined by the legendary PURE GENIUS. raffles, auctions, hog roasts, face painting and more. All volunteers and musicians are supporting us and giving there time for free
Lewis Herbert was born in 2002 and was diagnosed with West Syndrome at 3 moths of age.
This has since developed into a condition called Lennox Gastaut Syndrome (LGS). LGS is a rare and extremely severe form of epilepsy with multiple seizure types. It causes severe global developmental delay.
He can have 100’s of different seizures every day and his condition is resistant to any medication or therapies which have been tried.
He is severely disabled and unable to do anything for himself. He relies on his parents, Gary & Lexi for all his personal care needs. He requires 24hr care on a daily basis and his parents have had to give up work to look after him!.
He can’t walk or talk, but enjoys being out of his wheelchair and wriggling about (in his own unique style) on his soft mats and also loves music.
We are trying to raise more money to support him to get another motorised chair and other essential items for the house
It is my personal challenge to try and make as much money as possible with the support from my friends who all have agreed to undertake events and challenges throughout the past few years and now I thought I would call on my musician friends and business contacts to put on a great day, enjoyable for all and hopefully raise money for this great family.
I would love to see everyone there on the day but if you can't make it, please spread the word and this page.
Any donations, raffle prizes, auction prizes support and sponsorship is massively appreciated.
Thanks from the bottom of my heart!
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Tony Young started crowdfunding
Leave a message of support
Aug 26, 2017
Great work Tony! See you tomorrow. Adam and Becky x
Aug 16, 2017
Yearone Custom Flip Flop Company, Life For Lewis Flip Flops
Jul 29, 2017
Good luck Tony and all. Sorry we can't be there on the day. Good job.
Jul 28, 2017
Good luck with the charity fund raising
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About the fundraiser
Northampton, United Kingdom
I have been raising money for Lewis Herbert and his family for a couple of years now and want to put on a big event to push to get some really needed money to support and help the Herbert Family. I hope you are all with me
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