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I've raised £2500 to Support Rupert's Rainbow

Organised by Charlotte Jackson-Evans
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Children and youth

Story

🚴‍♂️💛 Charity Bike Ride – Supporting Rupert’s Rainbow 💛🚴‍♂️

On Saturday 23rd May 2026, three local Broughton lads — Dan, Leigh and Nige — are taking on an incredible charity bike ride starting and finishing at Broughton Primary School.

Their route will take them from Broughton Primary School ➡️ Wrexham Maelor Hospital ➡️ Alder Hey Children’s Hospital ➡️ back to Broughton Primary School 💪

They’re riding to raise awareness and funds for Rupert’s Rainbow, supporting Rupert and his wonderful family as they navigate his 1-in-1-million condition. Every donation helps provide the care, support and assistance this amazing family truly needs and deserves 🌈

Please show your support for these local lads — donate, share, and cheer them on! 👏🏼

AHC is an extremely rare genetic disorder, affecting approximately 1 in 1 million children. It is often described by specialists as a “time bomb” due to its unpredictable and potentially life-threatening nature. It is characterised by unpredictable episodes of paralysis, seizures, abnormal movements, breathing difficulties, and developmental delay. AHC shares features with multiple neurological disorders, including stroke, cerebral palsy, epilepsy, Alzheimer’s, Parkinson’s, and autism.

There is currently no cure for AHC, and symptoms vary greatly in both frequency and severity. Episodes can be triggered by excitement, extreme heat or cold, fever, food, lighting changes, physical exertion, stress, and water exposure. These episodes can last minutes, hours, or even days, and may occur without warning. Importantly, AHC carries a significantly increased risk of serious medical emergencies and sudden death, particularly during severe episodes involving breathing or cardiac complications. At present, there remains enormous uncertainty surrounding Rupert’s future.

As a result of this diagnosis, Rupert will require ongoing investigations, close monitoring, and lifelong full time specialist care.

Together, we can make a real difference ❤️

#CharityRide #Rupert’sRainbow #BroughtonPride #LocalHeroes #SupportOurCommunity #AlderHey #WrexhamMaelor 🚴‍♂️🌈

About fundraiser

Charlotte Jackson-Evans
Organiser

Donation summary

Total
£2,204.86