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Victoria Smyth raised £185 from 6 supporters.

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Closed 14/11/2017

18%
£185raised of £1,000 target by 6 supporters

    Weʼve raised £185 to Help raise funds for 5yr old Charlie who has Hyper IgM syndrome, his body doesn't produce antibodies to help protect him from infections

    Location
    Norwich, United Kingdom
    Time left
    Funded on Tuesday, 14th November 2017

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    Story

    Charlie is a 5yr old little boy that was born Hyper IgM Syndrome which is a very rare, one-in-a-million, and potentially life-threatening genetic mutation that severely compromises the immune system. The most common form of Hyper IgM is X-Linked Hyper IgM, which primarily affects boys.

    Since Charlie was only a few months old he's received fortnightly infusions of antibodies as well as other medication taken daily one of which is Antibiotics and due to the high dosage, this has an effect on his liver,

    Life for Charlie is so different to that of his friends.  Even the bacteria in a simple glass of tap water are dangerous for Charlie, everything he eats and drinks have to be processed and sterilised.

    A week before Christmas 2016, as the family were getting ready for Christmas, Charlie's dad received the devastating news that he had Hodgkin’s Lymphoma, so now they also had this awful disease to fight too.

    Charlie and his family have to regularly travel to Great Ormond street hospital. they receive very little funding to help with this and with lots of overnight accommodation also required as you can imagine this has a massive financial impact.

    Charlie has just received a Bone Marrow transplant but has a very long road ahead of him.

    I could keep writing and telling you the story of this brave family and the amazing little boy that is Charlie but unfortunately I only have a few characters left on this page but hopefully I have written enough for you to see and understand why we need to raise as much as we can to help with some of the expenses of travel and accommodation that the family have to find the funds for on a weekly basis

    I also hope that if we can help with some of these expenses it will also allow Martin to spend some time recovering himself as know through out all of his own Chemotherapy he only missed a few days from his full time job which is an inspiration in it's self

    Updates

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    Victoria Smyth

    Updates appear here

      7 months ago

      Victoria Smyth started crowdfunding

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      Supporters

      6

      • Juan Bevan

        Juan Bevan

        Jul 27, 2017

        £10.00

      • David O'Brien

        David O'Brien

        Jul 17, 2017

        £100.00

      • Gemma  Waller

        Gemma Waller

        Jul 17, 2017

        £20.00

      • Joanne Johnson

        Joanne Johnson

        Jul 17, 2017

        Unable to make the ball, happy to donate xx

        £25.00

      • David Whitworth

        David Whitworth

        Jul 17, 2017

      • Anonymous

        Anonymous

        Jul 17, 2017

        £10.00

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      About Crowdfunding
      About the fundraiser
      Victoria Smyth

      Victoria Smyth

      Norwich, United Kingdom

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