Your friends are fundraising. Don't miss out, opt in.

We did it!

Victoria Smyth raised £185 from 6 supporters

or

Start your own crowdfunding page

Closed 14/11/2017

0%
£185
raised of £1,000 target by 6 supporters

    Iʼve raised £185 to Help raise funds for 5yr old Charlie who has Hyper IgM syndrome, his body doesn't produce antibodies to help protect him from infections

    Norwich, United Kingdom
    Funded on Tuesday, 14th November 2017

    Don't have time to donate right now?

    Story

    Charlie is a 5yr old little boy that was born Hyper IgM Syndrome which is a very rare, one-in-a-million, and potentially life-threatening genetic mutation that severely compromises the immune system. The most common form of Hyper IgM is X-Linked Hyper IgM, which primarily affects boys.

    Since Charlie was only a few months old he's received fortnightly infusions of antibodies as well as other medication taken daily one of which is Antibiotics and due to the high dosage, this has an effect on his liver,

    Life for Charlie is so different to that of his friends.  Even the bacteria in a simple glass of tap water are dangerous for Charlie, everything he eats and drinks have to be processed and sterilised.

    A week before Christmas 2016, as the family were getting ready for Christmas, Charlie's dad received the devastating news that he had Hodgkin’s Lymphoma, so now they also had this awful disease to fight too.

    Charlie and his family have to regularly travel to Great Ormond street hospital. they receive very little funding to help with this and with lots of overnight accommodation also required as you can imagine this has a massive financial impact.

    Charlie has just received a Bone Marrow transplant but has a very long road ahead of him.

    I could keep writing and telling you the story of this brave family and the amazing little boy that is Charlie but unfortunately I only have a few characters left on this page but hopefully I have written enough for you to see and understand why we need to raise as much as we can to help with some of the expenses of travel and accommodation that the family have to find the funds for on a weekly basis

    I also hope that if we can help with some of these expenses it will also allow Martin to spend some time recovering himself as know through out all of his own Chemotherapy he only missed a few days from his full time job which is an inspiration in it's self

    Updates

    0

    Victoria Smyth

    Updates appear here

      7 years ago

      Victoria Smyth started crowdfunding

      Leave a message of support

      Page last updated on: 7/27/2017 16.27

      Supporters

      6

      • Juan Bevan

        Juan Bevan

        Jul 27, 2017

        £10.00

      • David O'Brien

        David O'Brien

        Jul 17, 2017

        £100.00

      • Gemma  Waller

        Gemma Waller

        Jul 17, 2017

        £20.00

      • Joanne Johnson

        Joanne Johnson

        Jul 17, 2017

        Unable to make the ball, happy to donate xx

        £25.00

      • David Whitworth

        David Whitworth

        Jul 17, 2017

      • Anonymous

        Anonymous

        Jul 17, 2017

        £10.00

      What is crowdfunding?

      Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

      The page owner is responsible for the distribution of funds raised.

      Great people make things happen

      Do you know anyone in need or maybe want to help a local community cause?

      Create you own page and donʼt let that cause go unfunded!

      About Crowdfunding
      About the fundraiser
      Victoria Smyth

      Victoria Smyth

      Norwich, United Kingdom

      Report this Page