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£1,625raised of £3,500 target by 61 supporters

Weʼre raising £3,500 to help fund a neater eater for my son who has quadriplegic cerebral palsy to enable him to feed himself independently

Bawtry, Doncaster District, United Kingdom

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Story

We are trying to raise funds to purchase a neater eater for my son who has quadriplegic cerebral palsy.

We have already raised funds towards an adapted disabled bike and have partial funds already towards the neater hence me lowering our target for those who have already seen our story.

Charlie is nearly 9 years old and for his whole life has never been able to feed himself, his occupational therapist has recently tried out a state of the art neater eater on Charlie which he took to instantly. The satisfaction, happiness and independence brought him and us to watch him do this was beyond words. Unfortunately the council are unable to purchase this equipment as they are in excess of £5,500 to buy. Having this piece of equipment would mean the world to Charlie and to us as a family to sit around the table having a family meal for charlie to feel independent and included like everyone else.

This piece of equipment would last into adulthood so would give many years of happiness and independence for Charlie.

Please find it in your heart to dig as deep as possible and share this much worthy cause. Charlie deserves to experience life as much as possible like any other able child.

Here's a little background info on charlie and his story:-

Charlie was born in December 2008 he was born at 37.5 weeks via emergency c-section and weighed a tiny 4lb 10oz the pregnancy was pretty normal however reduced movements were the cause of him being born via c section. It was evident when he was born that the placenta hadn't been functioning properly. When we took him home after spending his first week in the neonatal unit being tube fed he struggled to drink his bottle we just changed bottles not thinking anything, (this ended up being the fact he didn't have the muscle strength in his mouth to do it properly due to cerebral palsy) at 4 weeks he was re admitted by ambulance with a severe chest infection they picked up that his left arm seemed odd, floppy like he had an injury, so did relevant checks and X-rays and diagnosed him with urbs palsy assuming he must have been laid awkward in the womb, I was worried about his sight he didn't seem to be able to see but everyone around me thought i was over reacting as a new Mum etc, till the day arrived 19th April 2009 we took charlie out to wentworth estate and garden centre, literally 10 mins being out of the car charlie stopped breathing his face was blue when we looked down at him I was screaming my husband tried to give him the kiss of life, two people approached us they were my angels one was an a&e registrar the other a nurse they saved my babies life! We were admitted to Barnsley where on 3 occasions he stopped breathing again and the last time they had to bag and mask him to bring him back, he was transferred to sheffield children's hospital where he had numerous tests scans and xrays and was then diagnosed with a rare severe form of epilepsy "west syndrome" I was in a haze and suppose denial and believed epilepsy was treatable etc. The doctor noticed how his sight was poor (mothers instinct was right after all) all his developing was delayed he had only just learned to smile, we were told charlie may never smile again. As the months went on I still believed charlie would develop as any other able child still not realising the extensive damage this form of epilepsy does, reality hit i suppose after his 1st birthday and towards 18months not only could charlie not walk he still could not even sit unaided. Over the years after this once I grieved for what couldn't and never would happen I looked at all the positives and worked so hard to help charlie he got his smile back which is now his trademark, the first time he laughed turned me to a crying wreck, the first word he spoke was the colour "red" he learnt to talk, I never thought I would here him say "mummy" but he did, I never thought he would be able to tell me he loves me, but he can another heart melting moment, he knew all his colours when he was 2 years old he was not understandable to strangers but to me I knew everything he was saying, he went from being told he would do nothing to being a very clever, bright intelligent little boy. Charlie has an extensive knowledge on all his favourite tv programmes and DVDs, he knows his school routine and that of his peers, he's now talking in longer sentences, he can drive his power chair, and his funny sense of humour is second to none, he makes everyone smile who comes into contact with him. This little boy has gone through numerous hospital procedures, scans, X-rays, EEG, copious amount of blood tests, he's had many surgeries to help him deal and cope with the trials of what quadriplegic cerebral palsy does to a child just to try and help his tight muscles and the pain he suffers, he's already endured more than many adults would in their lifetime. All I can say is I'm so proud to be Charlie's mummy and will do everything I can for him to have as normal and independent life as possible

Thank you for taking the time to read our story xxx

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Updates

3

  • Natalie  Szpakowicz-Cook8 months ago
    Natalie  Szpakowicz-Cook

    Natalie Szpakowicz-Cook

    8 months ago

    Here's charlie trialling the equipment we wish to purchase xxx

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  • Natalie  Szpakowicz-Cook8 months ago
    Natalie  Szpakowicz-Cook

    Natalie Szpakowicz-Cook

    8 months ago

    Thanks to everyone who has donated and shared this page it means the world to us! We still have a long way to go so please keep sharing with the friends and family and ask them to do same! Any small donation will be greatfully received! Thank you 😊 xxxxx

    Update from the Page owner

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  • Natalie  Szpakowicz-Cook8 months ago
    Natalie  Szpakowicz-Cook

    Natalie Szpakowicz-Cook

    8 months ago

    Thank you so far to everyone who has shared and donated it means so much to us!! Please continue to share Charlie's page as much as possible!! Thank you everyone xxxx

    Update from the Page owner

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8 months ago

Natalie Szpakowicz-Cook started crowdfunding

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Page last updated on: 4/30/2018 4:34 PM

Supporters

61

  • Nicki

    Nicki

    Apr 30, 2018

    Good luck u guys xxx

    £30.00

  • Jayne Whittle

    Jayne Whittle

    Apr 21, 2018

    Hope you had a great day ..and reached your target amount. Xx

    £30.00

  • William  Hardy

    William Hardy

    Apr 21, 2018

    Good luck Natalie/charlie

    £20.00

  • Jim Gray CWU Branch

    Jim Gray CWU Branch

    Apr 16, 2018

    Hi donation from CWU Grampian & Shetland Branch (Jim Gray). Good luck on the day

    £100.00

  • Joanne Wilkinson

    Joanne Wilkinson

    Apr 11, 2018

    Wishing you lots of luck and not much but i just wanted to show my support. Your a amazing mum and person huni. Xx

    £10.00

  • Kate Shaw

    Kate Shaw

    Apr 10, 2018

    Good luck Hun x

    £10.00

  • Lynn Lockwood

    Lynn Lockwood

    Mar 15, 2018

    Good luck I hope it doesn’t take too long

    £20.00

Natalie  Szpakowicz-Cook

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About the fundraiser
Natalie  Szpakowicz-Cook

Natalie Szpakowicz-Cook

Bawtry, Doncaster District, United Kingdom

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