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£758raised of £1,280 target by 27 supporters

Weʼre raising £1,280 to Help correct the damage to liahs back and shoulders she has sustained from not letting her disability stop her from taking on the world

Leek, United Kingdom

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Story

As many of you know, our beautiful liah was born with a congenital condition called arthrogryposis, which affected the growth and development of her joints and muscles in her arms. We all know that liah doesn't let ANYTHING stand in her way, and she tries to do everything she can to keep up with her friends, such as partaking in several dance classes (which she is amazing at!) learning to play the violin (on her lap) along with her classmates.

She has also learnt to walk, feed herself, tie her shoe laces, brush her teeth ad dress herself. When we received the news of liahs condition when she was a few weeks old, we were told that it would be unlikely she would ever be independent. Needless to say, we were so happy that those doctors were wrong!

Unfortunately, all of this has come at a cost to liah. She has problems with her back and shoulders due to her using 'trick' manoeuvres to make the world accessible to her, which means that her back and shoulders are very misaligned. This causes pressures on places on her body that shouldn't and causes her pain, including dibilitating migraines that no adult, never mind six year old, should have to bear, and there is nothing the NHS can do to correct these problems, so it's something liah will have to live with for the rest of her life. So it was suggested to us by her orthopaedic surgeon that we try an osteopath. Again, this is not a treatment available on the NHS, so will need to be paid for privately. The total amount on this page is the cost for a year's worth of sessions.

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Updates

2

  • Charlotte Thorpe9 months ago
    Charlotte Thorpe

    Charlotte Thorpe

    9 months ago

    This is the current position of liahs spine and shoulders. As you can see, they are very out of line! Ever likely she gets migraines! I have drawn in the picture to show the curve in her spine, and the dots are the points on her shoulder blades. As you can see, they are very uneven!

    Update from the Page owner

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  • Charlotte Thorpe9 months ago
    Charlotte Thorpe

    Charlotte Thorpe

    9 months ago
    Update from the Page owner

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9 months ago

Charlotte Thorpe started crowdfunding

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Page last updated on: 3/16/2018 3:56 PM

Supporters

27

  • Mussa Afzal

    Mussa Afzal

    Mar 16, 2018

    I sincerely hope you get the funds for the well needed treatment! Good luck!

    £20.00

  • andy slater

    andy slater

    Mar 15, 2018

    liah,, member off staff not in office yesterdays cake sale,,but just gave me this £10 for you, andy

    £10.00

  • andy slater

    andy slater

    Mar 13, 2018

    liah,,just done a cake sale at work,, every one sends there best wishes xxxxxxx andy

    £60.00

  • Allie Jones Hawley

    Allie Jones Hawley

    Mar 8, 2018

    I have lived in constant pain since I was a child and am really inspired reading Liah's story! X

  • Alex M

    Alex M

    Mar 2, 2018

    £10.00

  • Emma Bradshaw

    Emma Bradshaw

    Feb 28, 2018

    Hope she gets the treatment she needs to help x

    £30.00

  • Sian and Gaz Chell

    Sian and Gaz Chell

    Feb 28, 2018

    Good luck to Liah. X

    £30.00

Charlotte Thorpe

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About the fundraiser
Charlotte Thorpe

Charlotte Thorpe

Leek, United Kingdom

No one likes to see their child suffer, but unfortunately lots of the time liah does. She takes several medications and spends quite a bit of time having appointments in hospital. There is no cure for her condition, but my only hope is to make her life more comfortable

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