Weʼve raised £135 to help a little boy called William Eames who was diagnosed with incurable Duchenne Muscular Dystrophy in Jan 2016 aged 3.
- Funded on Friday, 24th August 2018
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Jo Bridgeman went to University with William's Mum (also Jo). Here is their story:
"William, our beautiful, caring, funny, articulate little boy was diagnosed with Duchenne Muscular Dystrophy in January 2016 at just 3 years old.
Duchenne MD is one of the most common fatal genetic disorders to affect children around the world. 1 in 3500 boys are affected with DMD. It is a devastating, progressive and currently incurable muscle-wasting disease. Duchenne results in progressive loss of strength and is caused by a mutation in the gene that encodes for dystrophin, a protein that plays a key structural role in muscle fibre function. Boys with DMD do not produce dystrophin.
Life expectancy is improving as standards of care and knowledge about Duchenne increase however, there is currently no cure for Duchenne.
As a family we had never heard about this condition, and we are still learning.
We want to raise awareness of William and Duchenne – we need a cure, but we also need to ensure a fabulous life for our boy too so we set up Defending William Against Duchenne in January 2018.
Thank you Jo for supporting our cause"
Updates appear here
josephine eames started crowdfunding
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Jun 24, 2018
Jun 17, 2018
Good Luck Jo
Jun 16, 2018
Best of luck jo. Xx
Jun 15, 2018
Good Luck from Uncle A and Auntie D.
Jun 8, 2018
Jun 7, 2018
Good luck Jo
Jun 7, 2018
Best of luck xx
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