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Ross Stevenson

Ross Stevenson is crowdfunding

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£6,792raised of £10,000 target by 254 supporters

Weʼre raising £10,000 to Help Chloe move her arm again

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Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

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Story

Our daughter Chloe (aged 3) attended her first ballet lesson on Saturday 15 September, but only a couple of days later she suddenly lost complete movement of her left arm and hand. Chloe's left arm is now paralysed along with her hand.

She has Acute Flaccid Myelitis, a extremely rare, but serious condition with no known cause. However it is thought Chloe contracted a virus which caused inflammation on her spinal cord and has resulted in damage to the nerves that control her left arm and hand. (C5 and C6 of spinal cord). She also has weakness in one leg and her core, however with rehabilitation these are improving.

We are raising money to help rehabilitate with the hope that she regains strength and movement in her arm again and if not enable her to continue to use her arm with the support of a mobile arm aid. This specialised equipment will help her regain her muscle mass which has wasted and caused her shoulder to sublux.

She requires specialist equipment including a full stimulation body suit to help electrically stimulate the muscles in her arm as well as her core (which has also been affected).

Mobile Arm Aid (pictured) - £4,000 (estimate)

Full Electronic Stimulation Suit (Mollii) - £4100 plus VAT

Chloe attends hydrotherapy sessions in Bristol Children's Hospital which hugely benefits her recovery as this is where she has shown most movement in parts of her arm (slight elbow to wrist movement). However once we are discharged from Bristol, the community can only offer one session a week. We therefore would like to also pay for private sessions. Money not used for specialist equipment will fund extra physiotherapy and occupational health sessions.

As we research there might be more specialist equipment we need. Also we may look into any hand treatments if movement hasn't returned within 18 months.

Thank you for reading.

More information: https://www.dailymail.co.uk/health/article-6512033/Warning-issued-mystery-rise-rare-polio-like-illness-England.html

Chloe the Fighter

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Updates

6

  • Ross Stevenson2 months ago
    Ross Stevenson

    Ross Stevenson

    2 months ago

    A huge thanks to all our supporters for raising money for Chloe. It has allowed us to travel to different hospitals whilst staying together as a family, buying essential equipment as well as private sessions for Chloe. Strength is returning to her bicep and triceps so it is truly helping Chloe regain movement in her arm. So thank you! Photo of Chloe is of her most recent stay at Stoke Mandeville hospital in her Mollii Suit.

    Update from the Page owner

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  • Ross Stevenson5 months ago
    Ross Stevenson

    Ross Stevenson

    5 months ago

    You can follow Chloe's journey on her Facebook group. Search for 'Chloe the Fighter' on Facebook or use the link below: https://www.facebook.com/groups/320971855178788/?ref=bookmarks

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  • Ross Stevenson5 months ago
    Ross Stevenson

    Ross Stevenson

    5 months ago

    After conducting our own further research we have identified some other devices that may aid Chloe's recovery. One of which is the SaeboStim Micro (pictured) which provides sensory electrical stimulation to the arm and hand. Whilst Chloe has some sensory on her left arm, using this device will remind the brain that there is an arm there and hopefully aid nerve recovery. This has cost £211. We also have made enquiries about the Mollisuit and hope to have an assessment in the next couple of months.

    Update from the Page owner

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6 months ago

Ross Stevenson started crowdfunding

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Page last updated on: 5/15/2019 20.34

Supporters

254

  • alice milliken

    alice milliken

    May 15, 2019

    The remainder fundraising from sophie milliken xxx

    £77.00

  • alice milliken

    alice milliken

    May 9, 2019

    Sophie Millikens fundraising from crowdfunding. After going through the same illness Sophie wanted to raise money to help support Chloes full recovery. All our love xxx

    £1,060.00

  • Anonymous

    Anonymous

    Apr 26, 2019

    Touched by this, having 2 kids of my own, what a fighter! VOA colleague x

  • Anonymous

    Anonymous

    Apr 16, 2019

    Hope she gets better soon! X

    £10.00

  • carolyn sozer

    carolyn sozer

    Mar 26, 2019

    Good luck 💖

    £5.00

  • Beccy Laurie

    Beccy Laurie

    Mar 18, 2019

    £10.00

  • Anonymous

    Anonymous

    Mar 13, 2019

Ross Stevenson

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Ross Stevenson

Ross Stevenson

Devon

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