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£3,034raised of £10,000 target by 153 supporters

Weʼre raising £10,000 to Help Chloe move her arm again

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Story

Our daughter Chloe (aged 3) attended her first ballet lesson on Saturday 15 September, but only a couple of days later she suddenly lost complete movement of her left arm and hand. Chloe's left arm is now paralysed along with her hand.

She has Acute Flaccid Myelitis, a extremely rare, but serious condition with no known cause. However it is thought Chloe contracted a virus which caused inflammation on her spinal cord and has resulted in damage to the nerves that control her left arm and hand. (C5 and C6 of spinal cord). She also has weakness in one leg and her core, however with rehabilitation these are improving.

We are raising money to help rehabilitate with the hope that she regains strength and movement in her arm again and if not enable her to continue to use her arm with the support of a mobile arm aid. This specialised equipment will help her regain her muscle mass which has wasted and caused her shoulder to sublux.

She requires specialist equipment including a full stimulation body suit to help electrically stimulate the muscles in her arm as well as her core (which has also been affected).

Mobile Arm Aid (pictured) - £4,000 (estimate)

Full Electronic Stimulation Suit (Mollii) - £4100 plus VAT

Chloe attends hydrotherapy sessions in Bristol Children's Hospital which hugely benefits her recovery as this is where she has shown most movement in parts of her arm (slight elbow to wrist movement). However once we are discharged from Bristol, the community can only offer one session a week. We therefore would like to also pay for private sessions. Money not used for specialist equipment will fund extra physiotherapy and occupational health sessions.

As we research there might be more specialist equipment we need. Also we may look into any hand treatments if movement hasn't returned within 18 months.

Thank you for reading.

More information: https://www.dailymail.co.uk/health/article-6512033/Warning-issued-mystery-rise-rare-polio-like-illness-England.html

Chloe the Fighter

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Updates

4

  • Ross Stevenson10 days ago
    Ross Stevenson

    Ross Stevenson

    10 days ago

    After conducting our own further research we have identified some other devices that may aid Chloe's recovery. One of which is the SaeboStim Micro (pictured) which provides sensory electrical stimulation to the arm and hand. Whilst Chloe has some sensory on her left arm, using this device will remind the brain that there is an arm there and hopefully aid nerve recovery. This has cost £211. We also have made enquiries about the Mollisuit and hope to have an assessment in the next couple of months.

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  • Ross Stevenson10 days ago
    Ross Stevenson

    Ross Stevenson

    10 days ago

    Chloe has now been discharged from Bristol Children's Hospital and her care will continue in the community. We have been informed she will have only six weeks of hydrotherapy and her physio and occupational therapy will be once a week (and won't begin for a few weeks). We desperately need to fund additional sessions to give her the best chance of recovery. (Picture is of Chloe's last physio session before her discharge).

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  • Ross Stevenson18 days ago
    Ross Stevenson

    Ross Stevenson

    18 days ago

    Chloe has been very fortunate enough to enjoy Christmas at home on leave from hospital. Despite not having a chance to hype Christmas this year she very quickly got into the spirit of it. We will be returning to Bristol Children's Hospital on Sunday to continue her rehabilitation. We are hoping to be discharged soon once Bristol have organised our in-community care in Plymouth. This won't be much though which is why we will be using any funds left over from your extremely kind donations for additional private sessions.

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1 month ago

Ross Stevenson started crowdfunding

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Page last updated on: 1/21/2019 13.23

Supporters

153

  • ZENA AND IAN

    ZENA AND IAN

    Jan 21, 2019

    Thinking of Chloe and her family.

    £30.00

  • Deb Wildgoose

    Deb Wildgoose

    Jan 19, 2019

  • Anonymous

    Anonymous

    Jan 18, 2019

    All the best Chloe x

    £9.00

  • Sue and Mark

    Sue and Mark

    Jan 17, 2019

    We hope you get better Chloe all the best for your future

    £30.00

  • Neil & Sandy Verrico

    Neil & Sandy Verrico

    Jan 17, 2019

    All our good wishes to Cloe on her recovery.

    £50.00

  • Heather

    Heather

    Jan 16, 2019

    Lots of love to Chloe and family

    £25.00

  • Anonymous

    Anonymous

    Jan 15, 2019

    With very best wishes for the best possible outcome for Chloe

    £25.00

Ross Stevenson

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Ross Stevenson

Ross Stevenson

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