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Ross Stevenson raised £6,892.72 from 255 supporters

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Closed 01/04/2020

0%
£6,892
raised of £10,000 target by 255 supporters

    Weʼve raised £6,892 to Help Chloe move her arm again

    Devon
    Funded on Wednesday, 1st April 2020

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    Story

    Our daughter Chloe (aged 3) attended her first ballet lesson on Saturday 15 September, but only a couple of days later she suddenly lost complete movement of her left arm and hand. Chloe's left arm is now paralysed along with her hand.

    She has Acute Flaccid Myelitis, a extremely rare, but serious condition with no known cause. However it is thought Chloe contracted a virus which caused inflammation on her spinal cord and has resulted in damage to the nerves that control her left arm and hand. (C5 and C6 of spinal cord). She also has weakness in one leg and her core, however with rehabilitation these are improving.

    We are raising money to help rehabilitate with the hope that she regains strength and movement in her arm again and if not enable her to continue to use her arm with the support of a mobile arm aid. This specialised equipment will help her regain her muscle mass which has wasted and caused her shoulder to sublux.

    She requires specialist equipment including a full stimulation body suit to help electrically stimulate the muscles in her arm as well as her core (which has also been affected).

    Mobile Arm Aid (pictured) - £4,000 (estimate)

    Full Electronic Stimulation Suit (Mollii) - £4100 plus VAT

    Chloe attends hydrotherapy sessions in Bristol Children's Hospital which hugely benefits her recovery as this is where she has shown most movement in parts of her arm (slight elbow to wrist movement). However once we are discharged from Bristol, the community can only offer one session a week. We therefore would like to also pay for private sessions. Money not used for specialist equipment will fund extra physiotherapy and occupational health sessions.

    As we research there might be more specialist equipment we need. Also we may look into any hand treatments if movement hasn't returned within 18 months.

    Thank you for reading.

    More information: https://www.dailymail.co.uk/health/article-6512033/Warning-issued-mystery-rise-rare-polio-like-illness-England.html

    Chloe the Fighter

    Updates

    7

    • Ross Stevenson9 months ago
      Ross Stevenson

      Ross Stevenson

      9 months ago

      On Tuesday Chloe had a 13 hour nerve transfer operation in Oxford with an amazing team of surgeons and doctors. We were also extremely privileged and grateful that an American surgeon came over for Chloe's operation and to collaborate with the team. We know how fortunate and lucky we are and we're hugely proud of Chloe's bravery. She has been amazing. Chloe recovered well and we're now already home. Your donations will help us continue the vital therapy that Chloe will have to encourage her transferred nerves to move her arm. Thank you.

      Update from the Page owner

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    • Ross Stevenson1 year ago
      Ross Stevenson

      Ross Stevenson

      1 year ago

      A huge thanks to all our supporters for raising money for Chloe. It has allowed us to travel to different hospitals whilst staying together as a family, buying essential equipment as well as private sessions for Chloe. Strength is returning to her bicep and triceps so it is truly helping Chloe regain movement in her arm. So thank you! Photo of Chloe is of her most recent stay at Stoke Mandeville hospital in her Mollii Suit.

      Update from the Page owner

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    • Ross Stevenson1 year ago
      Ross Stevenson

      Ross Stevenson

      1 year ago

      You can follow Chloe's journey on her Facebook group. Search for 'Chloe the Fighter' on Facebook or use the link below: https://www.facebook.com/groups/320971855178788/?ref=bookmarks

      Share this update to help us raise more

    1 year ago

    Ross Stevenson started crowdfunding

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    Page last updated on: 7/27/2019 16.42

    Supporters

    255

    • Fiona Todd

      Fiona Todd

      Jul 24, 2019

      Donation from Carlisle RPA ice cream trolley organised by CRT

      £100.00

    • alice milliken

      alice milliken

      May 15, 2019

      The remainder fundraising from sophie milliken xxx

      £77.00

    • alice milliken

      alice milliken

      May 9, 2019

      Sophie Millikens fundraising from crowdfunding. After going through the same illness Sophie wanted to raise money to help support Chloes full recovery. All our love xxx

      £1,060.00

    • Anonymous

      Anonymous

      Apr 26, 2019

      Touched by this, having 2 kids of my own, what a fighter! VOA colleague x

    • Anonymous

      Anonymous

      Apr 16, 2019

      Hope she gets better soon! X

      £10.00

    • carolyn sozer

      carolyn sozer

      Mar 26, 2019

      Good luck 💖

      £5.00

    • Beccy Laurie

      Beccy Laurie

      Mar 18, 2019

      £10.00

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    Ross Stevenson

    Ross Stevenson

    Devon

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