Your friends are fundraising. Don't miss out, opt in.

0

%

£5,055raised of £10,000 target by 231 supporters

Weʼre raising £10,000 to Help Chloe move her arm again

What is crowdfunding?

Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered charity.

The page owner is responsible for the distribution of funds raised.

Story

Our daughter Chloe (aged 3) attended her first ballet lesson on Saturday 15 September, but only a couple of days later she suddenly lost complete movement of her left arm and hand. Chloe's left arm is now paralysed along with her hand.

She has Acute Flaccid Myelitis, a extremely rare, but serious condition with no known cause. However it is thought Chloe contracted a virus which caused inflammation on her spinal cord and has resulted in damage to the nerves that control her left arm and hand. (C5 and C6 of spinal cord). She also has weakness in one leg and her core, however with rehabilitation these are improving.

We are raising money to help rehabilitate with the hope that she regains strength and movement in her arm again and if not enable her to continue to use her arm with the support of a mobile arm aid. This specialised equipment will help her regain her muscle mass which has wasted and caused her shoulder to sublux.

She requires specialist equipment including a full stimulation body suit to help electrically stimulate the muscles in her arm as well as her core (which has also been affected).

Mobile Arm Aid (pictured) - £4,000 (estimate)

Full Electronic Stimulation Suit (Mollii) - £4100 plus VAT

Chloe attends hydrotherapy sessions in Bristol Children's Hospital which hugely benefits her recovery as this is where she has shown most movement in parts of her arm (slight elbow to wrist movement). However once we are discharged from Bristol, the community can only offer one session a week. We therefore would like to also pay for private sessions. Money not used for specialist equipment will fund extra physiotherapy and occupational health sessions.

As we research there might be more specialist equipment we need. Also we may look into any hand treatments if movement hasn't returned within 18 months.

Thank you for reading.

More information: https://www.dailymail.co.uk/health/article-6512033/Warning-issued-mystery-rise-rare-polio-like-illness-England.html

Chloe the Fighter

Share this story

Updates

5

  • Ross Stevenson23 days ago
    Ross Stevenson

    Ross Stevenson

    23 days ago

    You can follow Chloe's journey on her Facebook group. Search for 'Chloe the Fighter' on Facebook or use the link below: https://www.facebook.com/groups/320971855178788/?ref=bookmarks

    Share this update to help us raise more

  • Ross Stevenson1 month ago
    Ross Stevenson

    Ross Stevenson

    1 month ago

    After conducting our own further research we have identified some other devices that may aid Chloe's recovery. One of which is the SaeboStim Micro (pictured) which provides sensory electrical stimulation to the arm and hand. Whilst Chloe has some sensory on her left arm, using this device will remind the brain that there is an arm there and hopefully aid nerve recovery. This has cost £211. We also have made enquiries about the Mollisuit and hope to have an assessment in the next couple of months.

    Update from the Page owner

    Share this update to help us raise more

  • Ross Stevenson1 month ago
    Ross Stevenson

    Ross Stevenson

    1 month ago

    Chloe has now been discharged from Bristol Children's Hospital and her care will continue in the community. We have been informed she will have only six weeks of hydrotherapy and her physio and occupational therapy will be once a week (and won't begin for a few weeks). We desperately need to fund additional sessions to give her the best chance of recovery. (Picture is of Chloe's last physio session before her discharge).

    Update from the Page owner

    Share this update to help us raise more

2 months ago

Ross Stevenson started crowdfunding

Leave a message of support

Page last updated on: 2/20/2019 14.12

Supporters

231

  • Claire

    Claire

    Feb 20, 2019

    £5.00

  • Anonymous

    Anonymous

    Feb 19, 2019

  • Sarah Langley

    Sarah Langley

    Feb 16, 2019

    Sending lots of well wishes to brave little Chloe and hope she has a full, speedy recovery soon!

    £20.00

  • Gordon McKay

    Gordon McKay

    Feb 16, 2019

    Donated previously but had to do again to tip you over into £5,000. Congratulations for all the money you've already raised.

    £7.00

  • Kelv Williams

    Kelv Williams

    Feb 15, 2019

    Keep fighting

    £30.00

  • Anonymous

    Anonymous

    Feb 14, 2019

    From Vanessa's work colleagues

    £257.94

  • Anonymous

    Anonymous

    Feb 12, 2019

    I hope that you get the treatment that your beautiful little girl deserves. Best wishes. Sarah H

    £50.00

Ross Stevenson

Become a supporter

Help Ross Stevenson raise more

About the fundraiser
Ross Stevenson

Ross Stevenson

Devon

Report this Page
Donate