Weʼre raising £30,000 to Help get my brother Chris home for urgent medical help and safeguard his beautiful new family's future.
- Crowborough, UK
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My brother has just been diagnosed with a terminal illness called adrenal leukodystrophy which means in time he will lose all motor functions, his sight and his swallow reflex. He will end up in a vegetative state, succumb to dementia and end his days on a life support machine. He is 38 years old. Chris is a very proud and private person who wouldn't want me to go into too much detail, but has had a series of health issues since early teens which we now realise are all linked to this diagnosis. Safe to say he hasn’t had it easy but in the past year or so we have seen him truly happy for the first time in his life. He is recently married to Sharon and had his gorgeous son Michael who is just 5 months old.
Chris is currently living in China where he received his diagnosis and although the Chinese doctors have given him great care so far, ongoing mental and physical support for Chris and his family is not their expertise and very limited. Chris being Chris, his primary focus is to make sure Sharon and little Michael are cared for now and in the future. Therefore we desperately need to get him and his family home, one because the UK lead the way in Mito diseases and secondly because our family can help take care of all three of them. This disease is genetic so Baby Michael will need to be tested. If Michael has the defected gene, we can plan ahead for treatment as the childhood onset is treatable.
Chris will not leave Sharon and Michael behind so our target is based on getting all three of them home to the UK. It covers Visa applications, flights, living costs, just for the first couple of months whilst the wider family groups together and assesses the situation. We are keen to see a specialist asap and may have to seek private healthcare as his diagnosis is time precious.
My two eldest daughters are devastated and within the first few days of hearing this news have already been out fundraising. Any donation will be gratefully received and no donation is too small.
To find out more about this horrid disease please visit the ALD Life Charity website. ALD Life provide invaluable advice and support to sufferers and their families.
Thank you from the bottom of our hearts if you can feel you can spare anything to help get Chris and family home and looked after.
Lisa, Mum, Nan, Michael, Ayla, Lottie, Indy, Zadie, my husband Chris... the list goes on.
Me with my brothers Chris and Michael
Chris aged 11
Chris DJing @ lifefm back in the day!
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Oct 13, 2018
Thinking of Chris and his family during this difficult time. Much love xo
Oct 12, 2018
Oct 9, 2018
I am a friend of Hazel through Contact the Elderly when we meet each month for afternoon tea. She told me of your family troubles and how anxious you all are to help Chris and his family return.
Hazel Le Port
Oct 8, 2018
My winnings on the Post Code Lottery last month. Wish there had been a few more noughts !!!!
Oct 5, 2018
Oct 5, 2018
Still praying for Chris and family xx
Oct 5, 2018
Our thoughts and prayers are with you all. We hope they are home with you all soon. Love Lisa & Jay. ( Mulcahy)
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