On the 10th April 2018 my 4 year old son Ciaran was diagnosed with Duchenne Muscular Dystrophy.
It is the most common fatal genetic disease diagnosed in childhood, almost always affecting boys.

Duchenne is a neuromuscular condition caused by the lack of a protein called Dystrophin (this protein is vital for muscle strength and function). It is a muscle wasting disease and sufferers are unlikely to live past the age of 30.

This page has been set up to help fund Ciaran's future medical equipment and adaptations that he will eventually need when his muscles start to deteriorate.

Money raised will also go towards day trips and breaks away to create lots of happy memories for Ciaran before he is unable to do things for himself.

Ciaran is a clever, funny and sociable boy he loves being active, dancing and having fun. His smile lights up any room. Duchenne may take away his ability to mobalise but it will not take away his bright bubbly personality.

On the 6th March 2020 my cousin Sean will be climbing Kilimanjaro to raise funds for Ciaran. Please donate what you can.

Thank you for reading Ciaran's story. Every penny helps towards creating happy lasting memories for my boy before he is unable to do things independently.

Hope is all we have.