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Hayley O'Rourke raised £3,007 from 104 supporters

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Closed 11/09/2020

100%
£3,007
raised of £3,000 target by 104 supporters

    Weʼve raised £3,007 to help with costs towards Ciaran's future medical equipment and adaptations.

    Birmingham, UK
    Funded on Friday, 11th September 2020

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

    The page owner is responsible for the distribution of funds raised.

    Story

    On the 10th April 2018 my 4 year old son Ciaran was diagnosed with Duchenne Muscular Dystrophy.
    It is the most common fatal genetic disease diagnosed in childhood, almost always affecting boys.

    Duchenne is a neuromuscular condition caused by the lack of a protein called Dystrophin (this protein is vital for muscle strength and function). It is a muscle wasting disease and sufferers are unlikely to live past the age of 30.

    This page has been set up to help fund Ciaran's future medical equipment and adaptations that he will eventually need when his muscles start to deteriorate.

    Money raised will also go towards day trips and breaks away to create lots of happy memories for Ciaran before he is unable to do things for himself.

    Ciaran is a clever, funny and sociable boy he loves being active, dancing and having fun. His smile lights up any room. Duchenne may take away his ability to mobalise but it will not take away his bright bubbly personality.

    On the 6th March 2020 my cousin Sean will be climbing Kilimanjaro to raise funds for Ciaran. Please donate what you can.

    Thank you for reading Ciaran's story. Every penny helps towards creating happy lasting memories for my boy before he is unable to do things independently.

    Hope is all we have.

    Updates

    2

    • Hayley O'Rourke1 year ago
      Hayley O'Rourke

      Hayley O'Rourke

      1 year ago
      Update from the Page owner

      Share this update to help us raise more

    • Hayley O'Rourke2 years ago
      Hayley O'Rourke

      Hayley O'Rourke

      2 years ago

      My cousin Sean is going to be trekking Kilimanjaro early next year to raise funds for Ciaran please donate what you can x x x

      Share this update to help us raise more

    3 years ago

    Hayley O'Rourke started crowdfunding

    Leave a message of support

    Page last updated on: 6/2/2020 10.02

    Supporters

    104

    • Ellis O’Rourke

      Ellis O’Rourke

      Jun 2, 2020

      💚💚💚

      £20.00

    • Marie

      Marie

      May 10, 2020

      Best wishesMarie and Bobxx

      £20.00

    • Hayley  O'Rourke

      Hayley O'Rourke

      Apr 6, 2020

      From Tom and Staff at nhs blood service x

      £100.00

    • Anonymous

      Anonymous

      Mar 22, 2020

      £5.00

    • Helen P

      Helen P

      Mar 8, 2020

      Hope you're well Sean and doing well. Only sorry I can't donate more x

      £10.00

    • Anonymous

      Anonymous

      Mar 6, 2020

      Good Luck Sean you will smash it!

      £20.00

    • Kat Bias

      Kat Bias

      Mar 6, 2020

      Good luck with the climb Sean! xxx

      £20.00

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    About Crowdfunding
    About the fundraiser
    Hayley O'Rourke

    Hayley O'Rourke

    Birmingham, UK

    Ciaran's Cause Duchenne Warrior. Hope for Ciaran

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