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£876raised of £50,000 target by 41 supporters

Weʼre raising £50,000 to Enable me to have a treatment called HSCT to halt my Multiple Sclerosis. This will mean I will walk and be able to use my hands FOREVER xx

Rotherham, United Kingdom

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Story

❤️❤️❤️❤️Treatment to HALT my MS called HSCT:

HSCT stands for Hematopoietic Stem Cell Treatment

Why?..........
Im a Mum to our 7 year old Aaron and a wife to Phil, poor lad! 😂😂 after having a back operation in 2012 i was diagnosed in 2013 with RRMS! So life as a new Mum was hard! Before i knew i had MS i thought it was me who just wasnt good at being a Mummy! 😢😢 When i found out i had MS i thought MY GOD IM DOING A FAB JOB 😂😂

MS is a degenerative disease and even in such a short time of 4 years my body is failing! One of the hardest things is ‘I look normal’ so people dont think i need help! My god ive had some horrid things said when i park in a disabled space or in the staff car park at Aarons school! I intend to do as much as i can with my boys for as long as i can 💙💙💙💙💙💙💙💙💙💙💙💙💙💙💙

After 2 years of my research and following other MS sufferers having the treatment we as a family have made our minds up to 100% go forward with Fundraising for the treatment and have it as soon as I can............

ASAP is key as this HALTS progression, not cures MS!

For example I could have a relapse and loose the use of my leg for instance, so this would be permanent damage and something that HSCT cannot reverse.

What would happen?.........

The treatment is available to have in the UK for £70k! however UK are NOT as skilled at this treatment as Mexico is ......

WHY?

Purely because they have been offering the treatment for 10 years and the Uk 4 years! AND A MASSIVE THING WITH STEM CELL TREATMENT is being away from germs and infections whilst your body recovers from the treatment.

In the UK due to beds and rooms not being available, yes even though you are paying, you can be pushed from pillar to post!

However in Mexico you have your own hospital room, apartment with doctors and nurses on tap a Carer and a driver all with full English.

So this decision has not been made lightly this treatment is very invasive and like with any treatment or operation there is a chance of death! Part of the treatment is Chemotherapy, albeit mild chemotherapy it’s still chemotherapy and I will loose my hair and be weak.

I will be in Mexico for 4 weeks maximum. A friend who has just come back was finished after 3 weeks, however obviously when I get back I will need rest and to wear a mask to avoid germs and infections.

When........... ASAP

We’ve asked Aaron if I should go for treatment as I could be away for a month, he said he will miss me and won’t like me with no hair but he’s pleased I’m going to try and halt my MS 💙💙💙💙💙💙

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Updates

11

  • Claire Burgin2 months ago
    Claire Burgin

    Claire Burgin

    2 months ago

    Aaron raised £60 by doing the Mini Mudder 💙💙💙💙💙💙💙💖💖💖💖💖

    Update from the Page owner

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  • Claire Burgin2 months ago
    Claire Burgin

    Claire Burgin

    2 months ago

    On 20th May my gorgeous cousin and her lovely boyfriend her friends all did the Tough Mudder and Aaron has done the mini mudder ...... We are so so grateful to all 💖💙💖💙💖💪🏻💖💪🏻💖💪🏻💖💪🏻💙💙💙💙💙 They have raised a lot of money for me bless them 💪🏻💪🏻💪🏻💪🏻💪🏻💪🏻💪🏻💪🏻💪🏻 💖💖💖💖💖💖💖💖💖

    Update from the Page owner

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  • Claire Burgin2 months ago
    Claire Burgin

    Claire Burgin

    2 months ago

    Bowled over by kindness once again today THANK YOU SO SO MUCH GUYS 💖💙💖💙💖💙💖💙💖💙💖

    Update from the Page owner

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7 months ago

Claire Burgin started crowdfunding

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Page last updated on: 6/10/2018 8:33 AM

Supporters

41

  • Nicola Wilkinson

    Nicola Wilkinson

    Jun 7, 2018

    from Nicola and Alan Wilkinson (Paul's Sister) good luck with raising the Money

    £10.00

  • HELEN TAYLOR

    HELEN TAYLOR

    Jun 7, 2018

    We climbed Pen Y Fan to make a difference for you, Phil and Aaron. Our struggle today was easier than your struggle everyday. We love you and support you in your choices. Paul and Helen

    £200.00

  • Stacey Pinnington

    Stacey Pinnington

    Jun 7, 2018

    £20.00

  • Anonymous

    Anonymous

    May 31, 2018

    £10.00

  • Aaron Eaton

    Aaron Eaton

    May 22, 2018

    Well done everyone, let’s do it again!

    £40.00

  • david atkinson

    david atkinson

    May 19, 2018

    We know you will run your heart out Tiff, good luck.We hope everything goes well for you Claire.Dave and Janet Atkinson

    £20.00

  • Pauline Atkinson

    Pauline Atkinson

    May 15, 2018

    What a deserving cause! Good luck tiffany on tough mudder on Sunday! Xxx

    £20.00

Claire Burgin

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About the fundraiser
Claire Burgin

Claire Burgin

Rotherham, United Kingdom

Help me to halt this disease that there is no cure from! I live with daily battles! My worst problem is major fatigue and pain In my hands and knees .....No two people who have MS are the same! X

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