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£2,631raised of £10,000 target by 57 supporters

Weʼre raising £10,000 to Support Claire Hubbard to attempt to stop her CSF leak

Stafford, UK

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Story

I have been suffering with an originally undiagnosed CSF leak and constant head pain for 8.5 years now and think I have finally found a doctor to help me. I am trying to raise funds to have surgery on the veins in my head to release any pressure that is there that could be causing the CSF pressure to rise. This in turn creates more problems as I then go into low pressure as cysts fill or burst with the fluid. I then get very weak, unable to communicate and can often end up having a non-epileptic seizure. I would love to work full time and feel that this doctor could either partially or fully help me.

If you would like to contribute, my family and I would be so grateful - it could mean a 'normal 'life could resume - which, after all this time, would be like a dream come true. My friends are running in a 5k fun run in September and if you would like to sponsor them, that would help so much. If I can secure some funding, I can arrange the surgery much sooner than otherwise - as the NHS waiting lists are extraordinarily long.

Sweet dreams,

C x

Thank you so much. C x

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Updates

5

  • Claire Hubbard11 days ago
    Claire Hubbard

    Claire Hubbard

    11 days ago

    We have had the costs now for the surgery and it’s way more than we anticipated. We are still going to go through with it as we’re desperate to see if it will help. Any further surgery needed will have to wait. Thank you so much everyone for your continued support - I can’t tell you how appreciative we are - surgery booked for 13th September... 😳

    Update from the Page owner

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  • Claire Hubbard25 days ago
    Claire Hubbard

    Claire Hubbard

    25 days ago
    Update from the Page owner

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  • Claire Hubbard25 days ago
    Claire Hubbard

    Claire Hubbard

    25 days ago

    I’ve now had the 2nd ‘ballooning’ and also been to see the ENT specialist today. It’s a go! He’s going to remove bone from the side of the vein behind my left ear first! If necessary, I may need the right side doing too. I’ve sent off for costs as I can get it done soon if I have it done privately. The NHS has about a year’s waiting list. Finger’s crosses its not out of reach. 🤞 Thank you everyone for your continued support. Xx

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4 months ago

Claire Hubbard started crowdfunding

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Page last updated on: 8/12/2018 7:37 PM

Supporters

57

  • Claire Newens

    Claire Newens

    Aug 12, 2018

    £10.00

  • Ann Hunt

    Ann Hunt

    Aug 11, 2018

    Hope everything goes well for you. Thinking of you. Xxx

    £20.00

  • Mark Picken

    Mark Picken

    Aug 10, 2018

    £20.00

  • Laura Gray

    Laura Gray

    Aug 10, 2018

    You are a real inspiration xx

    £20.00

  • Emma Barnett

    Emma Barnett

    Aug 10, 2018

    Behind you all the way Claire xx

    £10.00

  • Judith Gilbert

    Judith Gilbert

    Aug 9, 2018

    All the best Claire . Love Neil and Judith Gilbert xx

    £20.00

  • Tracey Ramster

    Tracey Ramster

    Aug 6, 2018

    Thinking of you Claire and your family x

    £20.00

Claire Hubbard

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About the fundraiser
Claire Hubbard

Claire Hubbard

Stafford, UK

I had a delayed diagnosis of a csf leak after collapsing in 2009 and being successfully treated with targetted blood patching in 2014. Friends and family raised funds for me to travel to USA for further diagnosis and treatment. I am now looking for funds for head surgery.

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