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Claire Hubbard raised £2,932.45 from 68 supporters

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Closed 13/10/2018

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£2,932raised of £10,000 target by 68 supporters

    Weʼve raised £2,932 to Support Claire Hubbard to attempt to stop her CSF leak

    Stafford, UK
    Funded on Saturday, 13th October 2018

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    Story

    I have been suffering with an originally undiagnosed CSF leak and constant head pain for 8.5 years now and think I have finally found a doctor to help me. I am trying to raise funds to have surgery on the veins in my head to release any pressure that is there that could be causing the CSF pressure to rise. This in turn creates more problems as I then go into low pressure as cysts fill or burst with the fluid. I then get very weak, unable to communicate and can often end up having a non-epileptic seizure. I would love to work full time and feel that this doctor could either partially or fully help me.

    If you would like to contribute, my family and I would be so grateful - it could mean a 'normal 'life could resume - which, after all this time, would be like a dream come true. My friends are running in a 5k fun run in September and if you would like to sponsor them, that would help so much. If I can secure some funding, I can arrange the surgery much sooner than otherwise - as the NHS waiting lists are extraordinarily long.

    Sweet dreams,

    C x

    Thank you so much. C x

    Updates

    8

    • Claire Hubbard4 months ago
      Claire Hubbard

      Claire Hubbard

      4 months ago

      I visited the surgeon on Friday and he is very pleased with my progress so far. The surgery was a success and the left jugular vein is now unkinked! I can now look up, eat more chocolate :) and am gradually increasing the distance I can walk. Thank you everyone for your support. I really couldn't have done it without you as it cost a lot more in the end (£10,400)! We are now switching to the NHS for further treatment (possibly surgery on the right side too) and so are closing the page. Looking positive! C x

      Update from the Page owner

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    • Claire Hubbard4 months ago
      Claire Hubbard

      Claire Hubbard

      4 months ago

      Hi everybody! Well, I had the first operation on Thursday and so far, so good! It is still painful and hard to move my head too much, and the painkillers are helping. My surgeon was able to remove all the bone from the side of the jugular and has resected the C1 vertebrae to allow the vein to have more room to drain. I have to take it easy for a couple of weeks before returning back to work after the follow up in Cambridge. Thank you everyone for your continued support and interest. We're keeping everything crossed that this works. C:)

      Update from the Page owner

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    • Claire Hubbard4 months ago
      Claire Hubbard

      Claire Hubbard

      4 months ago

      Tomorrow is surgery day!! We travel to Cambridge in the morning and I will update the page as soon as I am able. Thank you everyone for your continued support - it means so much for all the family. Thank you... C x

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    9 months ago

    Claire Hubbard started crowdfunding

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    Page last updated on: 10/2/2018 16.15

    Supporters

    68

    • Kerry Derbyshire-Bennett

      Kerry Derbyshire-Bennett

      Oct 2, 2018

      Sent with lots of love. You are doing amazing x

      £15.00

    • Elizabeth

      Elizabeth

      Sep 17, 2018

      Wishing you all the best for your recovery. Love Elizabeth and Ruth x

      £50.00

    • Anonymous

      Anonymous

      Sep 16, 2018

      You are truly an inspiration Claire!! Finding your blog made me realize I wasn’t alone and helped me to keep hope. Thank you for sharing your story and bravely pushing us all forward!!

    • Jessica O'Connell

      Jessica O'Connell

      Sep 16, 2018

      £20.00

    • Charlotte

      Charlotte

      Sep 16, 2018

      £10.00

    • Horst Mayer

      Horst Mayer

      Sep 14, 2018

      Hope all goes well for the operation.Helen, Horst, Yvonne, Thomas and William.

      £30.00

    • Eleanor Spencer

      Eleanor Spencer

      Sep 13, 2018

      Wishing you all the luck in the world x

      £10.00

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    About Crowdfunding
    About the fundraiser
    Claire Hubbard

    Claire Hubbard

    Stafford, UK

    I had a delayed diagnosis of a csf leak after collapsing in 2009 and being successfully treated with targetted blood patching in 2014. Friends and family raised funds for me to travel to USA for further diagnosis and treatment. I am now looking for funds for head surgery.

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