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Sara Gardner raised £875 from 30 supporters

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Closed 05/06/2017

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£875raised of £5,000 target by 30 supporters

    Weʼve raised £875 to get Clara much needed help and advice from The USA

    Lancashire
    Funded on Monday, 5th June 2017

    What is crowdfunding?

    Crowdfunding is a new type of fundraising where you can raise funds for your own personal cause, even if you're not a registered nonprofit.

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    Story

    Clara is our daughter. We are looking for sponsors to help. Clara is 2 yrs old & has a very rare life limiting syndrome called Smith Lemli Opitiz. There is only about 800 people world wide with this syndrome about 32 in the UK believed although not confirmed. We have been told she got this syndrome from us as we are carriers with no symptoms so this has completely shocked us ,we were expecting a healthy happy carefree thriving baby. Only to be told seven months later (as Clara was undiagnosed for this long ) that she was very sick . We were told Clara would never be able to live on her own she would have severe learning difficulties, will never talk & possibly never walk as well as suffering from lots of medical conditions ,problems with all major organs can occur with this syndrome i.e. heart ,lungs ,liver etc it seems our girl has a big fight ahead for the rest of her life & we are doing everything we can as parents to give her the best fighting chance of a pain-free happy life
    This has been a huge shock and changed our lives so much with no answers here in the Uk for us.
    We are fundraising to go to America this year for an experimental trial/conference to meet the only doctors in the world who actually know anything about this syndrome. Please are you able to help us get there ?
    Clara has already shocked doctors by doing more than they said she would do these included things like moving,giggling,interacting, playing with toys, talking and walking (just got her first standing frame and actually called me mama 😀 she may only ever say a few words in her life but that's a good one )
    We have been doing a lot of fundraising and have appeared in lots of local newspapers,national magazines like Take a Break and Best magazine plus doing Christmas stalls,making bracelets ,toys and sorting out raffle prizes now and are organising a fun day but we are still a very long way from target so if you can help in anyway this would be amazing thank you so much for your time.

    Updates

    1

    Sara Gardner

    Updates appear here

    • Sara Gardner2 years ago
      Sara Gardner

      Sara Gardner

      2 years ago
      Update from the Page owner

      Share this update to help us raise more

    2 years ago

    Sara Gardner started crowdfunding

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    Page last updated on: 6/4/2017 21.26

    Supporters

    30

    • Katey Giffard

      Katey Giffard

      Jun 4, 2017

      xx I don't know you but I have just read your story from a link on Facebook Sending lots of good wishes I hope you exceed the target! xx

      £10.00

    • Julie Gardner

      Julie Gardner

      May 27, 2017

      Sending very best wishes to you all. Love from us all.xxx

      £30.00

    • anne robb

      anne robb

      May 9, 2017

      Wishing you and your family Love and Best wishes for a happy future

      £10.00

    • Stephanie  Booth

      Stephanie Booth

      May 8, 2017

      I hope she gets the help she's needed 💗

      £10.00

    • Anonymous

      Anonymous

      May 1, 2017

    • Madaleine Ann.

      Madaleine Ann.

      Apr 9, 2017

      Clara I believe is my 4th cousin, I hope she gets all the help she needs to make every day better. Love from Madaleine xx

      £20.00

    • debbie sharples

      debbie sharples

      Apr 7, 2017

      Good luck with your fund raising xx

      £20.00

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    About Crowdfunding
    About the fundraiser
    Sara Gardner

    Sara Gardner

    Lancashire

    we are doing everything we can to give our child the best life she can have. we cannot do this without your support. we need answers which no one has here in the uk. Please ask yourself what would you do to help your child thank you for your time

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