Weʼve raised £0 to Enable me to cope and manage living alone with Muscular Dystrophy. Remove exclusions to places & things I use to do with medical equipment.
- Huddersfield, UK
- Closed on Thursday, 16th August 2018
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From a very young age I knew something was wrong and doctors kept telling me nothing was wrong.Then by the time I was 19 there was a robbery and my shoulder got damaged and wouldn't heal. After that I had episodes of falling over for no reason, for many years after that the falls become more frequent and I became weaker and weaker. I was going to doctors for years and being told I had a back problem and then when I had enough by the age of 27 I went to the doctors and told GP to measure my legs and then went a month later and I lost an inch, it was then they sent me for tests.
Then three years later I got diagnosed with a rare form of Muscular Dystrophy (Miyoshi Myopathy Limb Girdle type 2B). As the years have gone on I was determined not to use a chair, I struggled on sticks doing a full time job determined never to give up but I got weaker and weaker and now had to use a wheelchair full time.
Now I am 37 years old living alone and trying to make the most out of life. Hoping to save for equipment I need but I am struggling and it brakes my heart that I have to ask for your kind generosity to help me make the most of my life.
Equipment I need and why
Batec Hybrid wheel chair handbike £5495 this clips on my manual chair to use everyday to take pressure off my weak shoulder with hand cycle instead of wheel push all the time for pain relief and electric motor for me to get up slopes and hills with living in hilly Huddersfield.
Mountain trike £4495 this is a 4 x 4 wheelchair to get me back to the outdoors I love, to go on roller walks, rambles, garden, allotments and local parks again as been excluded from places and things I love doing has caused my depression so this would sort my well begin and get me active again.
Sunrise medical Quickie Jive Up £17105 is an electric chair that can go into many positions, most important stand me up so I can get rid of the pain and infections of pressure sores and to reach things in my own home/out plus been at the same social level as my able friends and relatives would help me feel like I belong with everyone and get noticed at high reception desks.
Between all 3 chairs it would be like having all my limbs back in the long term and thank you for reading.
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About the fundraiser
I am 37 years old and I have always lived, studied and worked in Huddersfield/Brighouse in retail, childcare, machine Operator and sales. Studied at HTC for NNEB diploma after school. I loved working full time until physical and mental health deteriorated with M.D & depression.
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